by Gabbie Nadeau | Dec 6, 2022 | Media Room, Uncategorized
by Shaun Heasley | www.disabilityscoop.com As the holiday season gets underway, hundreds of malls will offer individuals with disabilities a special opportunity to meet with Santa Claus without the hubbub that such visits often entail. Roughly 500 shopping centers...
by Gabbie Nadeau | Feb 24, 2021 | Media Room, Uncategorized
The Cornelia de Lange Syndrome (CdLS) Foundation has joined forces with over 25 million Americans living with a rare disease and health care advocates around the world for Rare Disease Day® on February 28. Rare Disease Day is an annual awareness day dedicated to...
by Gabbie Nadeau | Jan 19, 2021 | Media Room, Uncategorized
The Cornelia de Lange Syndrome (CdLS) Foundation, which the only organization in the country dedicated to CdLS, and is headquartered in Avon, CT, is pleased and proud to announce the election of five new outstanding members to its prestigious Board of Directors....
by Gabbie Nadeau | Feb 24, 2020 | Media Room, Uncategorized
Norm Winnerman, retired Danbury High School teacher and Athletic Director, and valued member of the Cornelia de Lange Syndrome (CdLS) Foundation will be receiving the Rare Impact Award. The National Organization for Rare Disorders (NORD) will be honoring all...
by Gabbie Nadeau | Sep 6, 2019 | Media Room, Uncategorized
By Sean Teehan The Avon-based Cornelia de Lange Syndrome (CdLS) Foundation has moved its headquarters to a larger office in town to facilitate growth, it said. The CdLS Foundation has 10 employees and provides services — including running support groups and four...
by Gabbie Nadeau | Sep 4, 2019 | Media Room, Uncategorized
Dear Ms. Spigarolo, Mr. Kraft and the New England Patriots Team: I want to extend a sincere thank you, on behalf of all families with children with special needs, for providing access to enjoy your training camp. This year was even more important and special for our...
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