The CdLS Blog

You Asked, We Answered: Seizure concerns

You Asked, We Answered: Seizure concerns

By CdLS Foundation Clinical Advisory Board (CAB) Can you please respond to these concerns and the course that the treatment and evaluation should take? Is it unusual for seizures to develop at this age? Do most children with CdLS manifest them earlier in life? Our son...

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Sibling Story

Sibling Story

By Natalie, Kalani's sibling What do you feel is the coolest thing about your sister/brother? Kalanis is such a special little guy. He’s small and super cute, and he always does his own thing without worrying about what anyone else thinks. He’s really good at knowing...

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Sibling Story

Sibling Story

By Maya, Sienna's sibling What do you feel is the coolest thing about your sister/brother? The coolest thing about my little sister, Siena, is that she has the best memory. Siena will remember the tiniest details of an event so long, like it was yesterday. Her memory...

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Meet Kalani 2025 Update!

Meet Kalani 2025 Update!

By Kalani's Family Kalani is 20 months old! He is a silly, goofy kid who loves having fun and playing. During my pregnancy with him, we were told he was small, but they did not know why. After birth, we went to countless doctors to find an answer to all of his...

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Sibling Story

Sibling Story

By Hunter, Moriah's sibling What do you feel is the coolest thing about your sister/brother? Moriah loves to snuggle with me and enjoys being a part of anything fun I’m doing. I like making her laugh and she is always there for me. What is one of the hardest things...

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On the Cover – Atlee Sue

On the Cover – Atlee Sue

Written by Tiffany J., Atlee’s Mom Atlee Sue can light up anyone’s day that she meets. She is so full of Jesus and life that you can’t help but smile around her. Atlee is very sassy and loves to laugh, dance, and be outside with her brother. She also loves bath time...

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