The CdLS Blog

Written by Tiffany J., Atlee’s Mom Atlee Sue can light up anyone’s day that she meets. She is so full of Jesus and life that you can’t help but smile around her. Atlee is very sassy and loves to laugh, dance, and be outside with her brother. She also loves bath time...

By Melanie Burney DisabilityScoop.com As middle school language arts teacher Shana Caputo moved around her social studies classroom, she gently pulled a leash to guide the regular, four-legged visitor: a Greater Swiss Mountain dog, Skye. Caputo is among nearly three...

By Scarlett's Family Our daughter Scarlett is 3 years old. We found out at our 30-week anatomy scan that she had a limb difference. Scarlett has three cute little fingers and a heart-shaped chin. We had planned to have her by c-section, and the date was scheduled;...

by Shaun Heasley Disabilityscoop.com A documentary about the decades-long fight for disability rights culminating in the passage of the Americans with Disabilities Act is set to premiere. The film “Change, Not Charity: The Americans with Disabilities Act” follows the...

The Cornelia de Lange Syndrome Foundation (CdLS) will benefit from a Color Run fundraiser next month hosted by the Science Outreach Club at Eckerd College.  The Eckerd College Science Outreach Club recently established a Students for Rare chapter affiliated with the...

By CdLS Foundation Clinical Advisory Board (CAB) Do individuals with CdLS gain weight in a regular basis? It is very difficult for children with CdLS to gain weight quickly. Obviously, minimizing gastroesophageal reflux will help. They really gain weight at their own...

Parenting Special Needs parentingspecialneeds.org Reducing Anxiety Anxiety is one of the most common challenges faced by autistic youth. As parents, when we see our children afraid or anxious, we naturally try to make them feel better. This includes allowing our...

Parenting Special Needs parentingspecialneeds.org From a freshly bathed baby to a sticky handed toddler, and then to a sweaty middle school-er, we are there as our children grow and develop, But, it is the area of puberty (and the necessary proper hygiene that goes...

Parenting Special Needs Magazine No matter how well you plan, things that you never expected can still happen. Flexibility is crucial, as is staying on top of things. Discover why planning and going with the flow are necessary in your life. I have always been a...

By CdLS Foundation Clinical Advisory Board (CAB) Is frequent constipation related to CdLS? Yes, constipation is frequently seen in CdLS, in up to 40% of individuals. For routine constipation I think prune juice and other dietary manipulations are helpful. Also, I...