by Gabbie Nadeau | Jan 19, 2021 | Media Room, Uncategorized
The Cornelia de Lange Syndrome (CdLS) Foundation, which the only organization in the country dedicated to CdLS, and is headquartered in Avon, CT, is pleased and proud to announce the election of five new outstanding members to its prestigious Board of Directors....
by Gabbie Nadeau | Jan 14, 2021 | Research News
Abstract The aim of this study was to evaluate bone health and body composition by dual-energy X-ray absorptiometry (DXA) in individuals with Cornelia de Lange Syndrome (CdLS). Overall, nine individuals with CdLS (five females, all Caucasian, aged 5–38 years) were...
by Gabbie Nadeau | Jan 7, 2021 | Uncategorized
Update as of November 2021, We now have COVID immunization for 5-12 year olds. This is a lower dose, because their immune system is so much better and quicker than those of teens and adults. We strongly encourage all children with CdLS at those ages to receive the...
by Gabbie Nadeau | Dec 30, 2020 | In Memoriam
It is with great sorrow that we announce the passing of our beloved Gulmina. Where she used to be there is a hole in the world which we find ourselves walking around in the day and falling in at night. Gulmina was born on October 28, 1989 in Chicago, Illinois. She...
by Gabbie Nadeau | Oct 6, 2020 | Uncategorized
Norm Winnerman, valued member of the CdLS Foundation will be receiving the Rare Impact Award from NORD. NORD will be honoring all exceptional awardees, virtually, on October 9, 2020 at 7:00 pm EST. The award honors his years of service as a pioneer, mentor and...
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