A lot of people think that it requires a distinctive or special type of family to raise a child with special needs but that’s far from the truth. In all actuality, it is that child that creates the “special” family. I know this is true because Nikki was that child for us. She created our special family…
Nikki was like no other child, and I do not say that because of her disabilities and differences. I say that because she touched, moved, and changed people like no other person I’ve ever seen before. Nikki did this simply though her strength and fortitude, her captivating smile and looks she gave, though her heart and the way she loved unconditionally. And it didn’t matter if you had only seen pictures of her and/or followed her story via social media, or if you knew her well and were close to her, either way she had the same effect on everyone and left a lifelong lasting impression. Nikki somehow possessed the ability to touch other people’s heart like I have never seen before.
Despite her obvious disabilities, Nikki was just like every other child and there wasn’t anything that could slow her down. She was a daughter, a sister, an aunt, a granddaughter and of course so much more. Nikki was sweet, caring, and loving. She was curious, and of course mischievous. Nikki was a small and petite girl but at the same time she was mighty and powerful. She was fearless and adventurous. With Nikki, it was never a dull moment. She loved going to our family camp during the summers, 4 wheeling, and anything else outdoors. Nikki loved school and loved her friends. She may have been a little bit of a tomboy, but was the biggest diva, always being the “best dressed” in her class.
When Nikki’s journey finally came to an end, our journey changed. Throughout her ENTIRE life we were under the impression, and truly believed, that Nikki was given to us for the sole purpose of teaching her and helping her learn. But in the end, it was her who single handedly taught our entire family, what the true definition of LOVE, FAITH, and HOPE really are… We love you Nik-Nik and always will <3
Nikki changed my life the first time that I saw that Beautiful Face! She and her family are Amazing.
Thanks for the words Cindy!! We love ya!! <3
I only knew Nikki through social media but what a huge inspiration she still is to me. I could see the
Light in her eyes. The light of life . The light of innocence and hope. The light of joy and love. It was so clear that she loved the life that you gave her. The photos showed us how to simply enjoy our children. Include our children and they will take it from there. Thank you for always sharing your family with us. 💜💜💜
Thank you for sharing Patty 💜💜 Love love love hearing about and from those that were touched by Nikki 😊
As a fellow parent of a child with CdLS, I got to know Nikki through her families social media posts, sharing Nikki’s day to day life and the impact she made on those around her. Her passing to this day is part of our family as we remember her often, and say good night to her in heaven with my daughter Emmi. Emmi think she looks just like Nikki.
Thank you Nikki and family for letting us share Nikki’s life and your journey.