by Ashley Kus | Mar 31, 2025 | Media Room, Uncategorized
By Maya, Sienna’s sibling What do you feel is the coolest thing about your sister/brother? The coolest thing about my little sister, Siena, is that she has the best memory. Siena will remember the tiniest details of an event so long, like it was yesterday. Her...
by Ashley Kus | Mar 28, 2025 | Media Room, Uncategorized
By Kalani’s Family Kalani is 20 months old! He is a silly, goofy kid who loves having fun and playing. During my pregnancy with him, we were told he was small, but they did not know why. After birth, we went to countless doctors to find an answer to all of his...
by Ashley Kus | Mar 26, 2025 | Media Room, Uncategorized
By Hunter, Moriah’s sibling What do you feel is the coolest thing about your sister/brother? Moriah loves to snuggle with me and enjoys being a part of anything fun I’m doing. I like making her laugh and she is always there for me. What is one of the hardest...
by Gabbie Nadeau | Mar 25, 2025 | Media Room, Uncategorized
Written by Tiffany J., Atlee’s Mom Atlee Sue can light up anyone’s day that she meets. She is so full of Jesus and life that you can’t help but smile around her. Atlee is very sassy and loves to laugh, dance, and be outside with her brother. She also loves bath time...
by Ashley Kus | Mar 25, 2025 | Media Room, Uncategorized
By Melanie Burney DisabilityScoop.com As middle school language arts teacher Shana Caputo moved around her social studies classroom, she gently pulled a leash to guide the regular, four-legged visitor: a Greater Swiss Mountain dog, Skye. Caputo is among nearly three...
by Ashley Kus | Mar 20, 2025 | Media Room, Uncategorized
By Scarlett’s Family Our daughter Scarlett is 3 years old. We found out at our 30-week anatomy scan that she had a limb difference. Scarlett has three cute little fingers and a heart-shaped chin. We had planned to have her by c-section, and the date was...
by Ashley Kus | Mar 17, 2025 | Media Room, Uncategorized
by Shaun Heasley Disabilityscoop.com A documentary about the decades-long fight for disability rights culminating in the passage of the Americans with Disabilities Act is set to premiere. The film “Change, Not Charity: The Americans with Disabilities Act” follows the...
by Ashley Kus | Mar 17, 2025 | Media Room, Uncategorized
The Cornelia de Lange Syndrome Foundation (CdLS) will benefit from a Color Run fundraiser next month hosted by the Science Outreach Club at Eckerd College. The Eckerd College Science Outreach Club recently established a Students for Rare chapter affiliated with the...
by Ashley Kus | Mar 11, 2025 | Media Room, Uncategorized
By CdLS Foundation Clinical Advisory Board (CAB) Do individuals with CdLS gain weight in a regular basis? It is very difficult for children with CdLS to gain weight quickly. Obviously, minimizing gastroesophageal reflux will help. They really gain weight at their own...
by Ashley Kus | Mar 11, 2025 | Media Room, Uncategorized
Parenting Special Needs parentingspecialneeds.org Reducing Anxiety Anxiety is one of the most common challenges faced by autistic youth. As parents, when we see our children afraid or anxious, we naturally try to make them feel better. This includes allowing our...
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