IVF (In Vitro Fertilization) and CdLS

IVF (In Vitro Fertilization) and CdLS

We have twins, which were conceived via the IVF process. Only one twin is affected with CdLS. As part of the IVF process my wife produced numerous eggs, which were processed and made embryos. Two were placed into her (hence the twin boys), while we froze approximately...
IVF (In Vitro Fertilization) and CdLS

Nasal Polyps

What are nasal polyps and how do you know that your child has them? What symptoms would indicate the presence of nasal polyps or the need for treatment? What treatments are recommended? Nasal polyps are benign growths that can partially or completely occlude the nose,...
IVF (In Vitro Fertilization) and CdLS

Proton Pump Inhibitors (GI medications)

What is the maximum acceptable dosage of Prilosec? Does it depend on the age and weight of the person? What are your feelings on the long-term use of Prilosec? Have you seen adverse side effects? Prilosec (omeprazole), Prevacid (lanzoprazole) and Protonix...
IVF (In Vitro Fertilization) and CdLS

C. Difficile

Two times in the past month my daughter has had C. Difficile resulting from antibiotics taken after bowel surgery. We are concerned as the physicians tell us this is a very difficult bacteria to combat. C. Difficile is a bacterium that occurs normally in your stool....
IVF (In Vitro Fertilization) and CdLS

Birth Control: Depo-Provera vs. Patch

Depo-Provera shots were recommended over the patch for my daughter. She presently uses the patch. She is having bad cramps on her week off the patch after 3 months on it. The patch seemed less invasive, but now I wonder if we should have used the depo instead. We...
IVF (In Vitro Fertilization) and CdLS

Birth Control and Weight Gain

I am looking for some help regarding nutrition. My daughter is 17, and is about 4’3″. The problem is she is 124 lbs. About 30 pounds too heavy, I believe. The weight gain started with the addition of birth control pills to control her periods. At our last...
IVF (In Vitro Fertilization) and CdLS

Acid Blockers

What is the maximum acceptable dosage of Prilosec. Does it depend on the age and weight of the person? What are your feelings on the long-term use of Prilosec? What other medications can be used? Prilosec (omeprazole), Prevacid (lanzoprazole) and Protonix...
Meet Bella

Meet Bella

By: Ginny, Bella’s Mom  Bella is an outdoor-loving, curious 10-year-old who stands 41 inches tall and weighs 29 pounds. She has an oversized personality in a tiny package. She is goofy and has recently found her need for independence. Using a “nubby”...
Meet Addison

Meet Addison

By Addison’s Family Addie is a happy and energetic 3.5-year-old who loves swimming, riding her bike, and exploring new things. She attends a developmental preschool and is adored by her teachers and peers. She LOVES school and thrives in the school setting....