By Liam’s family
Liam was born with multiple health concerns that led his medical team to seek out a genetic cause.
At one-month-old, he was diagnosed with a rare genetic condition known as Cornelia de Lange Syndrome due to a gene mutation. Since then, his parents have been doing all they can to learn more about the syndrome, and the CdLS Foundation has been a huge source of support for them.
Navigating any rare diagnosis can be very difficult, as a community can be hard to find.
The Foundation works to provide resources and connections to medical experts who help educate and empower families to be the best advocates they can for their loved ones with CdLS.
Thank you so much for running and fundraising to support this organization, which does so much to support individuals with CdLS and their families.
Liam loves sitting in the jogging stroller while his Dad runs and wishes he could be there with you today, cruising alongside you.
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