by Gabbie Nadeau | May 16, 2023 | Media Room, Uncategorized
Hello CdLS Family, I was in beautiful Sienna, Italy, for International CdLS Awareness Day. I presented at the Disorders of Chromatin & Transcriptional Regulation Symposium on your behalf on International CdLS Awareness Day. I shared with the scientists how...
by Gabbie Nadeau | Feb 10, 2023 | Media Room, Uncategorized
Bryn was born on December 25, 2000, with tons of curly hair, a sweet upturned nose, and the funniest little cry I had ever heard. She weighed 6 lbs., 8 oz, a fairly normal weight, but she a full two pounds smaller than her big brother, so she seemed tiny to me. She...
by Gabbie Nadeau | Jan 18, 2023 | Media Room, Uncategorized
By Stanley Clark, Guest Contributor Workplace inclusivity for people with genetic and chronic conditions is a critical issue affecting millions worldwide. For example, when you’re struggling with a severe condition, it can be hard to decide whether to keep...
by Gabbie Nadeau | Dec 12, 2022 | Media Room, Uncategorized
www.themighty.com Most of us don’t like going to the doctor or getting blood drawn or being in a hospital. But can you go so far as to say you’re traumatized by it? Some of us can. Medical trauma or medical post-traumatic stress disorder is painfully...
by Gabbie Nadeau | Dec 6, 2022 | Media Room, Uncategorized
by Marin Wolf, The Dallas Morning News/TNS | www.disabilityscoop.com DALLAS — The first time Ella Jacobs met Dr. Dan Burch, she was on the verge of tears. Jacobs was afraid Burch, a clinical assistant professor at Texas A&M College of Dentistry, would tell her the...
by Gabbie Nadeau | Dec 6, 2022 | Media Room, Uncategorized
by Ebony Williams, The Atlanta Journal-Constitution/TNS | www.disabilityscoop.com As the holiday travel season gears up, Delta Air Lines is offering resources to travelers with autism spectrum disorder. Delta is offering an inclusive experience at the Atlanta and...
by Gabbie Nadeau | Dec 6, 2022 | Media Room, Uncategorized
by Shaun Heasley | www.disabilityscoop.com Disney’s iconic “It’s a Small World” ride is getting an update to be more inclusive of people with disabilities. Two dolls in wheelchairs have been added to the ride at Disneyland Resort in California. The new animatronic...
by Gabbie Nadeau | Dec 6, 2022 | Media Room, Uncategorized
by Shaun Heasley | www.disabilityscoop.com As the holiday season gets underway, hundreds of malls will offer individuals with disabilities a special opportunity to meet with Santa Claus without the hubbub that such visits often entail. Roughly 500 shopping centers...
by Gabbie Nadeau | Feb 24, 2021 | Media Room, Uncategorized
The Cornelia de Lange Syndrome (CdLS) Foundation has joined forces with over 25 million Americans living with a rare disease and health care advocates around the world for Rare Disease Day® on February 28. Rare Disease Day is an annual awareness day dedicated to...
by Gabbie Nadeau | Jan 19, 2021 | Media Room, Uncategorized
The Cornelia de Lange Syndrome (CdLS) Foundation, which the only organization in the country dedicated to CdLS, and is headquartered in Avon, CT, is pleased and proud to announce the election of five new outstanding members to its prestigious Board of Directors....
Recent Comments