The CdLS Blog
Theme Park Adding New ‘Hidden Disability’ Accommodations
By Shaun Heasley www.disabilityscoop.com In a first-of-its-kind move, a popular theme park will offer a discrete way for visitors to alert staff throughout the park that they may need extra help even if their disability isn’t apparent. Sesame Place Philadelphia said...
Navigating Dental Care
By CdLS Foundation Clinical Advisory Board (CAB) How often should the child’s teeth be brushed? Is there a particular toothbrush recommended? All individuals with CdLS should have their teeth brushed (or brush themselves) at least twice a day. An electric toothbrush...
7 holiday tips when your child has food sensitivities
By The Understood Team Expert Reviewed by Keri Wilmot, understood.org For many families, food plays a central role in holiday celebrations. That can be tough for kids who are sensitive to the tastes, smells, sounds, and textures of foods. Kids with food sensitivities...
Parenting Tips: Giving Yourself The Gift of Grace
By Erin Croyle parentingspecialneeds.mydigitalpublication.com You know the old adage, “life is a marathon, not a sprint.” For parents like us though, life is a marathon AND a sprint, often with no water breaks. Relentless. Despite our best intentions, we end our days...
Dealing with Aggression
By CdLS Foundation Clinical Advisory Board (CAB) Behavior (aggression) You asked: Our 5-year-old is very aggressive in school. When they don’t do what she wants, she tends to react very aggressively. What is happening with her? We don’t know what to do. Sometimes I...
Meet our volunteers
Our names are Ryan and Lauren Linton. We are excited to be Tennessee Regional Coordinators and share any information we have learned from our experiences, from doctors, and the CdLS Foundation. Navigating all the physical, emotional, and educational challenges...
Meet Taytum
By Taytum's family Since the beginning of my pregnancy things were rough. Twelve weeks in, I got optic neuritis and was hospitalized due to losing vision completely in my right eye. From then on, I was on steroids for most of the pregnancy which made baby T smaller. I...
Surviving the Holidays
By Donna B. Wexler parentingspecialneeds.org The holiday season is often challenging for most of us. For our family members with special needs, it is even more stressful. We need to employ all of our “social thinking skills” during this season when we are attending...
Meet Quinn
By Quinn's family Quinn is 11 years old and has an SMC3 mutation that has never been documented in anyone else, she is unique. She loves cats, music and her "annoying" older brother, Donovan. She has many challenges but is always improving when she has the right...
Over $18,000 Raised for CdLS Foundation During Second Annual Family Event
On October 5, 2024, the Schilling family hosted their 2nd annual Aubrie’s Army event to raise funds and awareness for the Cornelia de Lange Syndrome (CdLS) Foundation. CdLS is a rare genetic spectrum disorder that causes a broad range of potential physical, cognitive,...
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