by Gabbie Nadeau | Mar 30, 2020 | Uncategorized
Updated: 3/27/2020 3:52 PM We have been able to gather more information regarding CdLS and COVID-19. “Individuals with CdLS and immune deficiency have “antibody immune deficiency”. Antibodies are not a critical part of the immune system necessary for...
by Gabbie Nadeau | Mar 23, 2020 | Uncategorized
With schools closing and stay at home orders are being put into place, the CdLS Foundation wants to make sure the community has plenty of activities to do with being at home. The staff has found some pretty great ideas to help offset boredom and help...
by Gabbie Nadeau | Mar 19, 2020 | Uncategorized
To all our member families, We want to address the issue of Cornelia de Lange Syndrome and gene therapy, both to dispel any rumors that have been circulating and to paint a realistic picture of where things stand right now. Gene therapy is a recent advance in the...
by Francesca Scognamiglio | Mar 9, 2020 | In Memoriam
Molly deeply touched the lives of all who knew her. Her small stature belied her tenacious spirit. Although she never spoke a word, Molly taught us lessons every day of her short life. Most importantly, to slow down and appreciate the simple pleasures in life She...
Recent Comments