By Natalie, Kalani’s sibling
What do you feel is the coolest thing about your sister/brother?
Kalanis is such a special little guy. He’s small and super cute, and he always does his own thing without worrying about what anyone else thinks. He’s really good at knowing if someone is kind or not, like he can just tell! And the best part—his tiny face shows everything he’s feeling. His little expressions are so funny and honest, it’s like his heart is right there on his face. He’s only two, but he’s already full of charm and wisdom in his own sweet way.
What is one of the hardest things about having a sibling with special needs?
One of the hardest things about having a sibling with special needs is carrying a love so deep it sometimes hurts. You feel this constant mix of emotions—joy, pride, frustration, and guilt. There are times you wish things were easier for them, and it’s hard when so much attention has to go toward their care. But the hardest part, deep down, is the fear. The fear that their syndrome could one day cause something really bad to happen. That quiet worry never fully goes away. You learn to live with it, to be strong, to smile for them—but it’s always there. Still, through it all, the love you have for them is fierce and unshakable. It teaches you how powerful the heart can really be.
Has the Foundation helped you or your family? If so, how?
The Foundation has been such a blessing to me and my family. It’s opened our eyes to the challenges that other families with special needs children face, and in doing so, it’s made us feel less alone. Through shared stories, support, and understanding, it’s created a sense of community that reminds us we’re all in this together. It’s not just about receiving help—it’s about connection, compassion, and the comfort of knowing there are people who truly understand.
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