Dear Members of the CdLS Community:

In light of the growing public health concern around COVID-19 and the global potential for public transmission, we have a responsibility to the CdLS community to minimize the risk associated with spreading the virus.

As a result, the 2020 CdLS Foundation National Family Conference has been cancelled.

This was a tough call to make – the Conference is an incredibly important event for everyone who attends. It brings together the broad spectrum of our diverse and dynamic community. However, we need to prioritize the health and safety of every individual with CdLS, their families and our employees.

Everyone who has registered and paid will be refunded on the payment method they used while registering.

If you applied for First-Time Attendee Scholarship or Grandparent Scholarship, you are still eligible to apply during the next Conference cycle.

We are currently reviewing options that would allow us to bring together the professionals in our scientific community by hosting a virtual Scientific Symposium this year. Stay tuned.

In place of the in-person Conference, we’re looking for other ways to bring us together through video and interactive workshops. Thank you for your patience and understanding – as we problem solve the details for our next Family Conference.

In the meantime, we are working thoughtfully to ensure continuity of services while protecting individuals with CdLS and their families.

If you have any questions, please do not hesitate to email me at

Bonnie Royster, Executive Director

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