by Ashley Kus | Jun 25, 2025 | Media Room, Uncategorized
Earlier this month, the Bynum family raised funds and awareness for Cornelia de Lange Syndrome (CdLS) through a biking, skating, and “anything with wheels” event in Licht Park, MI. The fundraiser, “Rolling for Paige,” honored Paige Bynum. Paige...
by Ashley Kus | Jun 24, 2025 | Media Room, Uncategorized
www.disabilityscoop.com by Shaun Heasley A new documentary highlighting the experiences of the millions of paid and family caregivers across the nation is set to premiere. The two-hour film “Caregiving” focuses on the personal experiences of six caregivers while...
by Ashley Kus | Jun 23, 2025 | Media Room, Uncategorized
Mark J. Griffin, PhD understood.org Q. My child has reading and math challenges, and she’s worked really hard this year to make progress in these areas. Is it important for her to keep working on these skills over the summer? Or is it better if she has a real break?...
by Ashley Kus | Jun 23, 2025 | Media Room, Uncategorized
A Global Genes Quick Guide is a resource for advocates focused on pressing topics causing challenges in their lives and communities. Medical Gaslighting: The Issue Medical gaslighting occurs when a patient’s genuine concerns for their medical care are dismissed...
by Ashley Kus | Jun 16, 2025 | Media Room, Uncategorized
by Dahlia Bazzaz, The Seattle Times/TNS DisabilityScoop.com BELLEVUE, Wash. — Avery Lovern hovered over a table covered in royal blue construction paper, carefully writing the name of his favorite video game. The 18-year-old is still exploring what might come next...
by Ashley Kus | Jun 16, 2025 | Media Room, Uncategorized
parentingspecialneeds.mydigitalpublication.com The first time I was told my son was “too much” for camp, I was stunned. For families like mine, raising one of the 1 in 6 kids with a disability, summer often means closed doors instead of carefree fun. THE SUMMER CAMP...
by Ashley Kus | Jun 11, 2025 | Media Room, Uncategorized
How has being a dad to a child with CdLS shaped who you are today? Raekwon Graham – Being a dad to a child with CdLS shaped me who I am today in so many ways. Becoming a dad changes your life but becoming a dad to a child with CdLS reshapes my heart, my mindset,...
by Ashley Kus | Jun 10, 2025 | Media Room, Uncategorized
parentingspecialneeds.mydigitalpublication.com Creating a sensory-friendly home can ease stress, reduce overwhelm, and promote calm for autistic children. This guide shares four core principles, with room-by-room suggestions, to help you make practical changes that...
by Ashley Kus | Jun 10, 2025 | Media Room, Uncategorized
parentingspecialneeds.mydigitalpublication.com When you can’t get away, a “road trip” through your house can turn any day into a beach day. Learn how with this fun activity. TURN YOUR HOME INTO A FUN ROAD TRIP TO THE BEACH My family and I love going on road trips,...
by Ashley Kus | Jun 9, 2025 | Media Room, Uncategorized
By Ashley Kus It was an excellent night for ice cream in early June when the National Honor Society of Simsbury High School in Connecticut hosted a fundraiser at Ben & Jerry’s. The event raised $225 for Team CdLS. Special thank you to the staff at Ben &...
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