by Ashley Kus | Jun 9, 2025 | Media Room, Uncategorized
By Ashley Kus It was an excellent night for ice cream in early June when the National Honor Society of Simsbury High School in Connecticut hosted a fundraiser at Ben & Jerry’s. The event raised $225 for Team CdLS. Special thank you to the staff at Ben &...
by Ashley Kus | Jun 5, 2025 | Media Room, Uncategorized
by Jennifer Eberbach, MLive.com/TNS DisabilityScoop.com NORVELL TWP., Mich. — Jessie Behen attentively filled an apple seed pot, running her fingers through a container to find the best pinches of dirt while sitting inside a skills center at Imagine Center Farm. She...
by Ashley Kus | Jun 4, 2025 | Media Room, Uncategorized
Lexi Walters Wright understood.org It’s not always easy for the most well-meaning and intact sets of parents to get on the same page when raising a child who learns and thinks differently. But when parents are divorced or separated, there can be even more obstacles...
by Ashley Kus | Jun 3, 2025 | Media Room, Uncategorized
Disabilityscoop.com by Elena Perry, The Spokesman-Review/TNS SPOKANE, Wash. — Students in special education programs may abstain from the traditional high school fare; the buzzers and screaming at a basketball game or flashing lights at a school dance could be...
by Ashley Kus | Jun 3, 2025 | Media Room, Uncategorized
By Ali Cummins TheMighty.com My daughter began physical therapy when she was only 4 months old and started occupational therapy not long after. At the time, her hypotonia made it impossible for her to even lift her head. I spent my days watching the therapists try to...
by Ashley Kus | May 29, 2025 | Media Room, Uncategorized
The OBGYN was concerned at 28 weeks when mom was pregnant with Carter. Carter was small for his gestational age in the womb. Carter was born at 34 weeks 5 days via emergency c-section and was whisked away to the NICU. The doctors and nurses tested the placenta to see...
by Ashley Kus | May 27, 2025 | Media Room, Uncategorized
Originally By LUZJENNIFER MARTINEZ Valley Breeze Deputy Editor CENTRAL FALLS – For the sixth year in a row, Central Falls resident Sara Lopes Tavares held a Cornelia de Langue syndrome (CDLS) awareness day, in honor of her younger sister Samira, who was born with the...
by Ashley Kus | May 20, 2025 | Media Room, Uncategorized
Dear CdLS Foundation, I’m a mom to a 2-year-old. We are having issues with naps. I lay him down every single day from 1 pm until 3 pm and he lays in the dark playing. It doesn’t matter if he had hours of therapy or not, he just doesn’t want to nap and isn’t...
by Ashley Kus | May 20, 2025 | Media Room, Uncategorized
by Shaun Heasley DisabilityScoop.com Technology giant Apple is introducing a host of new features aimed at helping those with various disabilities. The company said this month that it will add “accessibility nutrition labels” to the product pages of apps and games in...
by Ashley Kus | May 19, 2025 | Media Room, Uncategorized
Peter Condon is 30 years old and lives in Spokane, WA. He was diagnosed with Cornelia de Lange Syndrome (CdLS) at the age of two. Many thought he would not speak more than a few words or be able to function in groups. Support and information from the CdLS Foundation...
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