by Ashley Kus | Mar 11, 2025 | Media Room, Uncategorized
By CdLS Foundation Clinical Advisory Board (CAB) Do individuals with CdLS gain weight in a regular basis? It is very difficult for children with CdLS to gain weight quickly. Obviously, minimizing gastroesophageal reflux will help. They really gain weight at their own...
by Ashley Kus | Mar 11, 2025 | Media Room, Uncategorized
Parenting Special Needs parentingspecialneeds.org Reducing Anxiety Anxiety is one of the most common challenges faced by autistic youth. As parents, when we see our children afraid or anxious, we naturally try to make them feel better. This includes allowing our...
by Ashley Kus | Mar 11, 2025 | Media Room, Uncategorized
Parenting Special Needs parentingspecialneeds.org From a freshly bathed baby to a sticky handed toddler, and then to a sweaty middle school-er, we are there as our children grow and develop, But, it is the area of puberty (and the necessary proper hygiene that goes...
by Ashley Kus | Mar 7, 2025 | Media Room, Uncategorized
Parenting Special Needs Magazine No matter how well you plan, things that you never expected can still happen. Flexibility is crucial, as is staying on top of things. Discover why planning and going with the flow are necessary in your life. I have always been a...
by Ashley Kus | Mar 4, 2025 | Media Room, Uncategorized
By CdLS Foundation Clinical Advisory Board (CAB) Is frequent constipation related to CdLS? Yes, constipation is frequently seen in CdLS, in up to 40% of individuals. For routine constipation I think prune juice and other dietary manipulations are helpful. Also, I...
by Ashley Kus | Mar 4, 2025 | Media Room, Uncategorized
By Shaun Heasley DisabilityScoop.com A new theme park is prioritizing the needs of children with disabilities as it opens its doors for the first time. The Peppa Pig Theme Park near Dallas opened over the weekend complete with a host of accessibility features. All...
by Ashley Kus | Feb 25, 2025 | Media Room, Uncategorized
By CdLS Foundation Clinical Advisory Board (CAB) Our seven-year-old son needs to have a cavity filled but is very uncooperative at the dentist’s office. Is there any anesthesia that would help him out? I don’t like putting him through such a traumatic thing and I hate...
by Ashley Kus | Feb 25, 2025 | Media Room, Uncategorized
On Saturday, January 25, 2025, Michelle Gentry, and her family hosted the final rodeo in a five-event “Bulls and Barrels” series to raise funds and awareness for the Cornelia de Lange Syndrome (CdLS) Foundation. CdLS is a rare genetic spectrum disorder that causes a...
by Ashley Kus | Feb 24, 2025 | Media Room, Uncategorized
By The National Organization for Rare Disorders (NORD) https://rarediseases.org/ Think of 10 people you work with, 10 people you went to school with, or even 10 of your social media followers. Now, consider this: statistically, one in every 10 Americans is living with...
by Ashley Kus | Feb 24, 2025 | Media Room, Uncategorized
Parenting Special Needs Magazine : January/February 2025 Sometimes, no matter how prepared we think we are, it’s not enough. Use this guide to prepare for emergencies, and download the attached handy family safety checklist. From factors like medical requirements and...
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