by Ashley Kus | Dec 4, 2024 | Media Room, Research News, Uncategorized
By CdLS Foundation Clinical Advisory Board (CAB) Mood Swings My teenage daughter is very high functioning; however, the older she gets, the more rigid and unwilling to accept changes in daily routines she becomes. She will cry uncontrollably, or become reclusive until...
by Ashley Kus | Dec 4, 2024 | Media Room, Research News, Uncategorized
By CdLS Foundation Clinical Advisory Board (CAB) Nonverbal Communication In a 9 year old male, squealing and grunting are the only vocal sounds. Should this be discouraged? We’d appreciate any guidance on teaching him to communicate “yes/no.” Are squealing and...
by Ashley Kus | Dec 4, 2024 | Media Room, Uncategorized
Posted By Claudia Axelrod, Dr. Shane T. Spiker, And Holly Downs parentingspecialneeds.org Adulthood is a challenge for anybody. Each of us moves toward a level of independence we didn’t previously have and is expected to be more responsible than at any other time in...
by Ashley Kus | Dec 2, 2024 | Media Room, Uncategorized
We’re Anabel and Joey, parents of Ophelia Perez, a strong-willed, always happy, and playful little girl. Naturally, when asked to become Regional Coordinators in Florida, we jumped at the opportunity. Ophelia “Ophe” was diagnosed with CdLS at age 4;...
by Ashley Kus | Dec 2, 2024 | Media Room, Uncategorized
By Izaak’s family Izaak is small, mighty, and thinks he’s our boss. He embodies a colossal presence, captivating those around him with his indomitable spirit and unyielding determination. Despite his small size, he commands attention, not through volume or...
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