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Communication Challenges
Challenging behaviors may arise in individuals with CdLS, leading to ineffective communication. Frustrations often occur when the individual is misunderstood or struggles to convey their thoughts clearly. Ensure everyone has an effective communication method to manage these challenging behaviors related to communication frustration. Effective communication must be understandable to all. Using signs and symbols can support those with speech difficulties, and it’s important to encourage methods that work in various settings. Any non-verbal communication system should align with the person’s verbal skills. Early intervention through speech and language therapy is vital for all individuals with intellectual disabilities.
Some parents find creating a communication passport for their loved ones helpful. This tool keeps
everyone involved and informed about how the individual prefers communicating.
Communication Passport
A communication passport is a personalized booklet, created by you, for individuals with communication difficulties. It offers key
information to help others understand their needs. It empowers users to share details and facilitates getting to know them, especially in
new environments.
information to help others understand their needs. It empowers users to share details and facilitates getting to know them, especially in
new environments.
Types of information included:
Name, age, and other biographical details.
How the individual communicates (e.g., verbally, using pictures, AAC devices).
Likes, dislikes, and interests.
Important people in their life (e.g., family members, friends).
Medical information, such as allergies or medications.
Support needs and strategies.
How the individual communicates (e.g., verbally, using pictures, AAC devices).
Likes, dislikes, and interests.
Important people in their life (e.g., family members, friends).
Medical information, such as allergies or medications.
Support needs and strategies.
Is there any financial help for the purchase of AAC apps? Are there certain apps that are found to work better for CDLS children? My son is 19 and non verbal. No help with any ACC.
Thank you for reaching out, and welcome to the CdLS Foundation. Please fill out our Let’s Get Acquainted form: https://www.cdlsusa.org/letsgetacquainted/
Once we receive your intake form, our Family Service Coordinators will connect with you. With a compassionate ear, they can help you:
Better understand CdLS
Help your doctors better understand CdLS
Get answers to questions about CdLS we cannot answer! We can contact experts for you.
Meet other families in the CdLS community
Find providers in your area
Learn about community resources that can help you and your family
Help you work with your Health Plan to obtain needed care
Support you with your school system to get needed services
Have someone to talk with when you need it
Warmly,
The CdLS Foundation