Dear CdLS Foundation,I’m a mom to a 2-year-old. We are having issues with naps. I lay him down every single day from 1 pm until 3 pm and he lays in the dark playing. It doesn’t matter if he had hours of therapy or not, he just doesn’t want to nap and isn’t tired. Then he will fall asleep between 5 and 6(even though bedtimes 7ish). But the problem is he will sleep for about 30 minutes. Then he won’t fall asleep till 9 or 10pm and then he’s up again around 3-6am.He hasn’t napped in over 3 weeks and maybe once a week he actually sleeps for 10-12 hours. But the other 6 days he is doing this crazy not sleeping routine.Does the Foundation have any ideas and suggestions?Signed,No-sleep mom
Sleep issues are super common in kids with neurodevelopmental disabilities, and dramatically impact the quality of life for the entire family. In a situation like this, it is worthwhile to schedule an appointment with your neurologist or developmental pediatrician specifically to discuss sleep. It really can take an entire appointment to discuss the potential behavioral and medical issues that could be factors and come up with a plan as to how to address them. Sorry there’s not a quick and easy answer here!
Best,
Kristin Baranano, M.D., Ph.D., Pediatric Neurology
Legal Disclaimer: Please take note that the CdLS Foundation’s Ask the Expert service is comprised of volunteer professionals in various areas of focus. Response times may vary and a response is not guaranteed. Answers are not considered a medical, behavioral, or educational consultation. Ask the Expert is not a substitute for the care and attention your child’s personal physician, psychologist, educational consultant, or social worker can deliver.
*Each individual with CdLS’ journey will be different and your loved one may not have the same experience as stated above. For more individualized assistance regarding this topic, please reach out to Family Service at familyservicesteam@CdLSusa.org or visit www.cdlsusa.org/ask-the-expert/
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