Originally published on Patch.com By Ellyn Santiago, Patch Staff
NORTH BRANFORD, CT — The North Branford Town Council was joined on Tuesday by North Branford’s Ashley Fernandez, regional coordinator for the CdLS Foundation, her husband Michael, daughter Lilly, and her daughter Lindsey, who was diagnosed with CdLS at the age of 18 months, to promote awareness about CdLS.
Mayor Rose Angeloni and the North Branford Town Council issued a proclamation declaring May 10th as International Cornelia de Lange Syndrome Awareness Day in North Branford.
Cornelia de Lange Syndrome is a little-known genetic disorder causing children to be born with a low birth weight, develop slowly cognitively and physically, and experience numerous medical complications. An estimated 30,000 men, women and children in the U.S. have CdLS and are undiagnosed or are without support services.
North Branford is proud to join in the national effort to promote awareness of CdLS and to seek positive and productive impacts on the lives of people with CdLS and their caregivers.
Recent Comments