by Ashley Kus | May 29, 2025 | Media Room, Uncategorized
The OBGYN was concerned at 28 weeks when mom was pregnant with Carter. Carter was small for his gestational age in the womb. Carter was born at 34 weeks 5 days via emergency c-section and was whisked away to the NICU. The doctors and nurses tested the placenta to see...
by Ashley Kus | May 27, 2025 | Media Room, Uncategorized
Originally By LUZJENNIFER MARTINEZ Valley Breeze Deputy Editor CENTRAL FALLS – For the sixth year in a row, Central Falls resident Sara Lopes Tavares held a Cornelia de Langue syndrome (CDLS) awareness day, in honor of her younger sister Samira, who was born with the...
by Ashley Kus | May 20, 2025 | Media Room, Uncategorized
Dear CdLS Foundation, I’m a mom to a 2-year-old. We are having issues with naps. I lay him down every single day from 1 pm until 3 pm and he lays in the dark playing. It doesn’t matter if he had hours of therapy or not, he just doesn’t want to nap and isn’t...
by Ashley Kus | May 20, 2025 | Media Room, Uncategorized
by Shaun Heasley DisabilityScoop.com Technology giant Apple is introducing a host of new features aimed at helping those with various disabilities. The company said this month that it will add “accessibility nutrition labels” to the product pages of apps and games in...
by Ashley Kus | May 19, 2025 | Media Room, Uncategorized
Peter Condon is 30 years old and lives in Spokane, WA. He was diagnosed with Cornelia de Lange Syndrome (CdLS) at the age of two. Many thought he would not speak more than a few words or be able to function in groups. Support and information from the CdLS Foundation...
by Ashley Kus | May 16, 2025 | Media Room, Uncategorized
By CdLS Foundation Clinical Advisory Board (CAB) We have been trying to toilet train our five year old, but have had little success. Can you help us understand what factors are involved in this process and when we might expect to see some gains? Toilet training is a...
by Ashley Kus | May 13, 2025 | Media Room, Uncategorized
By Lexi Walters Wright Understood.org Trips can be stressful for kids who learn and think differently. These tips can help your child prepare. Kids can be creatures of habit. And this is especially true for kids who learn and think differently. They often like keeping...
by Ashley Kus | May 12, 2025 | Media Room, Uncategorized
By the CdLS Community Can you share the moment you first learned about your child’s CdLS diagnosis? How did you feel, and what helped you through that time? Gabriella Watts – When I found out Kalani’s diagnosis, I was actually relieved. For a year, I knew...
by Ashley Kus | May 7, 2025 | Media Room, Uncategorized
By The Understood Team Understood.org Did you know that most smartphones and digital tablets have built-in assistive technology (AT) that can help with learning and thinking differences? The range of AT features varies depending on the device’s operating system. But...
by Ashley Kus | May 6, 2025 | Media Room, Uncategorized
By Shaun Heasley disabilityscoop.com Closed captioning for television and movies has remained largely unchanged for decades, but a new design aims to give people with disabilities a better idea of what’s happening on screen. Known as “Caption with Intention,” the...
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