by Gabbie Nadeau | Oct 31, 2018 | In Memoriam
Natalie was a joyful and radiant child. When she was born, her doctors did not anticipate her living long. She defied this prognosis, and lived five very vibrant years with her loving family. Born to Jane and Arsalan, Natalie was the 5th of 9 children in the Nikzad...
by Gabbie Nadeau | Oct 19, 2018 | Research News
Here is an interesting article on rare disease patients and families, written by By Peter L. Saltonstall, President and CEO of National Organization for Rare Disorders (NORD) about developments around the FDA Safety and Innovation Act. Here is a short excerpt for a...
by Gabbie Nadeau | Oct 19, 2018 | Research News
Dr. Olaf Bodamer wasn’t sure what was wrong with the 3-year-old boy he recently examined at Boston Children’s Hospital, but he had a hunch. The child’s muscle tone was weak, and he had taken longer than expected to start walking and talking. He also had unusual facial...
by Gabbie Nadeau | Oct 19, 2018 | Research News
The Cerebra Centre for Neurodevelopmental Disorders is organized through the School of Psychology at the University of Birmingham. Their work focuses on difficulties experienced by children and adults who have intellectual disabilities, autism spectrum disorders and...
by Gabbie Nadeau | Oct 17, 2018 | Uncategorized
On Friday, February 10, Emma Pietrafesa was given a magic wheelchair to kick off the Boynton Beach Barrier Free 5K celebration weekend. The 10-year-old was named the official starter of the race earlier this year. The wheelchair was unveiled at a pre-race ceremony at...
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