Many runners say that running has changed their lives. Team CdLS runners say that they have changed the lives of others. Kick off the running season with the Cornelia de […]

Hosted by Fran Rissland, mom to Riley For more information contact Fran at fran_rissland@hotmail.com

Explain why this feature is so important to the users success, and how it’s going to make their life easier. Make sure to use examples, and detail everything about this feature. Gice them as much value as possible. Keep the content succinct and engaging, you want the user to keep reading.

This webinar will discuss: • Clinical vs genetic testing • Various gene mutations associated with CdLS • Genetic testing that is available (including prenatally) • What are the benefits of […]

Save the date for the Midwest Family Gathering!  Hosted by Christy and Dave Whetstone!  Join families in the midwest region to spend time together talking, sharing stories, laughing, and learning […]

Many bicyclists say that biking has changed their lives. Team CdLS bicyclists say that they have changed the lives of others. Join the Cornelia de Lange Syndrome (CdLS) Foundation at […]

This webinar will discuss: • Self-injury • Impulse control • Destruction of property • Determining the appropriate consequences • Treatment options (ABA, etc.) or professional resources for families Presenter: Julia […]