Calendar of Events

Whether you're looking for the next family gathering, a golf tournament, or just want to see what's going on in your region, the calendar of events has all the what, when and where you need.

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September 2019

CdLS Conference Fundraising Tips Webinar

September 19 @ 12:00 pm - 1:00 pm

With the National Family Conference approaching in just under 10 months, now is the time to plan and save. Tasha Howland, Life Coach and mom to Peyton, will offer tips and strategies that you may find helpful to cover your expenses for Conference. She will also offer some fun ideas to help you get started on your way to your goals! Presenter: Tasha Howland, Life Coach, Youth Coaching Institute. Tasha empowers women and families to be the best advocates for…

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October 2019

Northwest Family Gathering

October 5 @ 11:00 am - 3:00 pm
Valley Ridge Community Center, 4644 S 188th St
SeaTac, WA 98188 United States
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Brew & BBQ

October 5 @ 5:00 pm - 8:30 pm
Currahee Brewing Company, 25 South Main Street
Alpharetta, GA 30009 United States

Join us for the 10th Annual Brew & BBQ for CdLS. Tickets: $35 in advance/$40 at the door Includes BBQ, 2 beer tickets & LIVE music. Cash bar available. Bid on our silent auction both online and LIVE! @

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Missouri Charity Golf Tournament

October 7
Tapawingo Golf Course, 13001 Gary Player Dr
St. Louis, MO 63127 United States
+ Google Map
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2019 Bank of America Chicago Marathon

October 13

Many runners say that running has changed their lives. Team CdLS runners say that they have changed the lives of others. Join the Cornelia de Lange Syndrome (CdLS) Foundation at the world-renowned Bank of America Chicago Marathon Sunday, October 13, 2019 The CdLS Foundation will be there with you every step of the way, providing you with: • Guaranteed race entry • Complimentary entry to the Balbo Hospitality Tent • An official Team CdLS singlet • Pre-Race & Post-Race Dinner…

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2019 Baltimore Running Festival

October 19

Virtual coaching, tee shirt, pre-race dinner with pizza and pasta and a view of beautiful Baltimore!

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November 2019

Multidisciplinary Clinic for Adolescents and Adults

November 2
Harvey Institute for Human Genetics, Greater Baltimore Medical Center, 6701 N. Charles St., Suite 2326
Baltimore, MD 21204 United States
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TCS New York City Marathon

November 3
New York City

TEAM CdLS REGISTRATION BEGINS WEDNESDAY, FEBRUARY 27, 2019 Contact Kristi Larson to express your intentions A smile from a child with CdLS inspires Team CdLS runners to turn their love of the sport into a passion to help raise funds for the hundreds of individuals that have this little- known syndrome. There is no cure. As a Team CdLS member, you are provided a guaranteed entry into the TCS New York City Marathon with the understanding that you will meet…

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March 2020

CdLS Clinic at Shriner’s Hospital

March 11, 2020 @ 8:00 am - 12:00 pm

Shriners Hospital for Children-Salt Lake City, Utah will have their annual Cornelia de Lange Syndrome Clinic March 11, 2020 from 8 am - 12 pm with a range of specialists available just for children with CdLS (new patients must be age 18 and younger). The specialties will include the following: pediatric orthopeadics, eyes ears nose and throat, gastrointestinal, pediatrics, neurology, genetics, the orthotics and prosthetic lab, and physical and occupational therapy services. Shriners Hospital for Children-Salt Lake City has been…

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June 2020

Ninth Biennial CdLS Scientific & Educational Symposium

June 24, 2020 - June 25, 2020
Marriott Tulsa Hotel, Southern Hills Tulsa, OK United States + Google Map
CdLS Foundation Scientific Symposium
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