For the entire month of March, when you purchase a $2.50 reusable Community Bag at the Stop & Shop located at 498 Bushy Hill Road, Simsbury, CT, $1 is donated […]

This Foundation-managed, free clinic occurs twice yearly at Greater Baltimore Medical Center (GBMC) in Baltimore, MD. Foundation Medical Director Antonie Kline, M.D., Director of Clinical Genetics at the Harvey Institute […]

Join us for a new, fun event to raise awareness and funds for our CdLS community. The Eckerd College Science Outreach Club has recently established a Students for Rare chapter affiliated with […]

Join a panel of siblings to gain insights into the fears and worries that siblings carry, the things that helped them (and those that didn’t), and how loving a brother […]

After 31 wonderful years, the New England Golf Classic is going virtual!! Join us for an exciting and new way to continue to raise awareness, funds, and keep tradition going. […]

International CdLS Awareness Day is observed each year to increase understanding and bring attention to Cornelia de Lange Syndrome (CdLS), an often misdiagnosed and little-known genetic condition. This special day […]

This event will help families understand the numerous stages to be considered while developing a special needs master plan for their loved one experiencing a disability. Presented by Mary McDirmid […]

Running for those who cannot! Thirty athletes for over the globe will be running the 26.2 miles thought the street of Chicago as Team CdLS participates in our 26th at […]

Tapawingo National Golf ClubSunset Hills, MOMore details to follow