Calendar of Events

Whether you're looking for the next family gathering, a golf tournament, or just want to see what's going on in your region, the calendar of events has all the what, when and where you need.

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March 2019

Southwest Region Family Gathering

March 9 @ 11:00 am - 2:00 pm
Red Mountain Park, 7745 E Brown Rd
Mesa, AZ 85207 United States
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Hosted by Courtney Hegarty, AZ Regional Coordinator

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CdLS Clinic at Shriner’s Hospital in Salt Lake City, Utah

March 13

(Serving individuals with CdLS who are 18 years old and younger) For more information contact Lynn Audette at LAudette@CdLSusa.org

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2019 United Airlines NYC Half Marathon

March 17
New York City

Many runners say that running has changed their lives. Team CdLS runners say that they have changed the lives of others. Kick off the running season with the Cornelia de Lange Syndrome (CdLS) Foundation at the United Airlines NYC Half Marathon Sunday, March 17, 2019 The CdLS Foundation will be there with you every step of the way, providing you with: • Guaranteed race entry • An official Team CdLS singlet • Team CdLS Swag Bag • Pre-Race Luncheon •…

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CdLS Family Gathering

March 23 @ 2:00 pm - 5:00 pm
Slope’s BBQ, 200 Johnson Ferry Rd
Atlanta, GA 30328 United States
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Hosted by Fran Rissland, mom to Riley For more information contact Fran at fran_rissland@hotmail.com

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April 2019

Board of Directors Meeting

April 5 - April 6
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Multidisciplinary Clinic for Adolescents and Adults

April 13
Harvey Institute for Human Genetics, Greater Baltimore Medical Center, 6701 N. Charles St., Suite 2326
Baltimore, MD 21204 United States
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Midwest Region Family Gathering

April 27
Beautiful Savior Lutheran Chuch, 7706 South 96th Street
LaVista, NE 68128 United States
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Save the date for the Midwest Family Gathering!  Hosted by Christy and Dave Whetstone!  Join families in the midwest region to spend time together talking, sharing stories, laughing, and learning from one another. The connections made between parents, grandparents, children, relatives, and professionals can last a lifetime. Who better to talk about what it’s like to experience the sleepless nights, the never ending tests and procedures and the concerns that a diagnosis of CdLS can bring, than another parent who…

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May 2019

2019 TD Five Boro Bike Tour

May 5
New York City

Many bicyclists say that biking has changed their lives. Team CdLS bicyclists say that they have changed the lives of others. Join the Cornelia de Lange Syndrome (CdLS) Foundation at the TD Five Boro Bike Tour Sunday, May 5, 2019 The CdLS Foundation will be there with you every step of the way, providing you with: • Guaranteed entry and placement in the first Start Wave • An official Team CdLS singlet • Pre-Race Luncheon • VIP Access to the…

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New England Charity Golf Tournament

May 20
Ipswich Country Club, 148 Country Club Way
Ipswich, MA 01938 United States
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Join us and other families in New England to celebrate the 27th Annual CdLS Foundation New England Golf Tournament. The tournament takes place at the Ipswich Country Club in Ipswich, MA. Participants will enjoy 18 holes of golf, brunch, dinner and an opportunity to win both skill and door prizes.

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October 2019

2019 Bank of America Chicago Marathon

October 13
Chicago

Many runners say that running has changed their lives. Team CdLS runners say that they have changed the lives of others. Join the Cornelia de Lange Syndrome (CdLS) Foundation at the world-renowned Bank of America Chicago Marathon Sunday, October 13, 2019 The CdLS Foundation will be there with you every step of the way, providing you with: • Guaranteed race entry • Complimentary entry to the Balbo Hospitality Tent • An official Team CdLS singlet • Pre-Race & Post-Race Dinner…

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