September 2019
CdLS Conference Fundraising Tips Webinar
With the National Family Conference approaching in just under 10 months, now is the time to plan and save. Tasha Howland, Life Coach and mom to Peyton, will offer tips and strategies that you may find helpful to cover your expenses for Conference. She will also offer some fun ideas to help you get started on your way to your goals! Presenter: Tasha Howland, Life Coach, Youth Coaching Institute. Tasha empowers women and families to be the best advocates for…
Find out more »October 2019
Brew & BBQ
Join us for the 10th Annual Brew & BBQ for CdLS. Tickets: $35 in advance/$40 at the door Includes BBQ, 2 beer tickets & LIVE music. Cash bar available. Bid on our silent auction both online and LIVE! @ www.biddingowl.com/brewandbbqforcdls
Find out more »
2019 Bank of America Chicago Marathon
Many runners say that running has changed their lives. Team CdLS runners say that they have changed the lives of others. Join the Cornelia de Lange Syndrome (CdLS) Foundation at the world-renowned Bank of America Chicago Marathon Sunday, October 13, 2019 The CdLS Foundation will be there with you every step of the way, providing you with: • Guaranteed race entry • Complimentary entry to the Balbo Hospitality Tent • An official Team CdLS singlet • Pre-Race & Post-Race Dinner…
Find out more »2019 Baltimore Running Festival
Virtual coaching, tee shirt, pre-race dinner with pizza and pasta and a view of beautiful Baltimore!
Find out more »November 2019
Multidisciplinary Clinic for Adolescents and Adults
Explain why this feature is so important to the users success, and how it’s going to make their life easier. Make sure to use examples, and detail everything about this feature. Gice them as much value as possible. Keep the content succinct and engaging, you want the user to keep reading.
Find out more »TCS New York City Marathon
TEAM CdLS REGISTRATION BEGINS WEDNESDAY, FEBRUARY 27, 2019 Contact Kristi Larson to express your intentions A smile from a child with CdLS inspires Team CdLS runners to turn their love of the sport into a passion to help raise funds for the hundreds of individuals that have this little- known syndrome. There is no cure. As a Team CdLS member, you are provided a guaranteed entry into the TCS New York City Marathon with the understanding that you will meet…
Find out more »March 2020
CdLS Clinic at Shriner’s Hospital
Shriners Hospital for Children-Salt Lake City, Utah will have their annual Cornelia de Lange Syndrome Clinic March 11, 2020 from 8 am - 12 pm with a range of specialists available just for children with CdLS (new patients must be age 18 and younger). The specialties will include the following: pediatric orthopeadics, eyes ears nose and throat, gastrointestinal, pediatrics, neurology, genetics, the orthotics and prosthetic lab, and physical and occupational therapy services. Shriners Hospital for Children-Salt Lake City has been…
Find out more »