Join us for the 10th Annual Brew & BBQ for CdLS. Tickets: $35 in advance/$40 at the door Includes BBQ, 2 beer tickets & LIVE music. Cash bar available. Bid […]

Many runners say that running has changed their lives. Team CdLS runners say that they have changed the lives of others. Join the Cornelia de Lange Syndrome (CdLS) Foundation at […]

Virtual coaching, tee shirt, pre-race dinner with pizza and pasta and a view of beautiful Baltimore!

Mary Anne Ehlert will be presenting an in depth look at what Retiring for 3 means: How much do you need and how much does your child need? When should […]

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TEAM CdLS REGISTRATION BEGINS WEDNESDAY, FEBRUARY 27, 2019 Contact Kristi Larson to express your intentions A smile from a child with CdLS inspires Team CdLS runners to turn their love […]

St. Louis Children's Hospital in St. Louis, Missouri will host their second Cornelia de Lange Syndrome clinic. The specialties in attendance will include the following: genetics, neurology, ophthalmology, audiology/ear, nose […]

Shriners Hospital for Children-Salt Lake City, Utah will have their annual Cornelia de Lange Syndrome Clinic March 11, 2020 from 8 am - 12 pm with a range of specialists […]

Many runners say that running has changed their lives. Team CdLS runners say that they have changed the lives of others. Kick off the running season with the Cornelia de […]