Join us for the 10th Annual Brew & BBQ for CdLS. Tickets: $35 in advance/$40 at the door Includes BBQ, 2 beer tickets & LIVE music. Cash bar available. Bid […]

Many runners say that running has changed their lives. Team CdLS runners say that they have changed the lives of others. Join the Cornelia de Lange Syndrome (CdLS) Foundation at […]

Virtual coaching, tee shirt, pre-race dinner with pizza and pasta and a view of beautiful Baltimore!

Mary Anne Ehlert will be presenting an in depth look at what Retiring for 3 means: How much do you need and how much does your child need? When should […]

Explain why this feature is so important to the users success, and how it’s going to make their life easier. Make sure to use examples, and detail everything about this feature. Gice them as much value as possible. Keep the content succinct and engaging, you want the user to keep reading.

TEAM CdLS REGISTRATION BEGINS WEDNESDAY, FEBRUARY 27, 2019 Contact Kristi Larson to express your intentions A smile from a child with CdLS inspires Team CdLS runners to turn their love […]

St. Louis Children's Hospital in St. Louis, Missouri will host their second Cornelia de Lange Syndrome clinic. The specialties in attendance will include the following: genetics, neurology, ophthalmology, audiology/ear, nose […]

Shriners Hospital for Children-Salt Lake City, Utah will have their annual Cornelia de Lange Syndrome Clinic March 11, 2020 from 8 am - 12 pm with a range of specialists […]