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  • Multidisciplinary Clinic for Adolescents and Adults

    Harvey Institute for Human Genetics, Greater Baltimore Medical Center 6701 N. Charles St., Suite 2326, Baltimore, MD, United States

    Explain why this feature is so important to the users success, and how it’s going to make their life easier. Make sure to use examples, and detail everything about this feature. Gice them as much value as possible. Keep the content succinct and engaging, you want the user to keep reading.

  • Genetic Testing and CdLS Webinar

    This webinar will discuss: • Clinical vs genetic testing • Various gene mutations associated with CdLS • Genetic testing that is available (including prenatally) • What are the benefits of […]

  • Midwest Region Family Gathering

    Beautiful Savior Lutheran Church 7706 South 96th Street, LaVista, NE, United States

    Save the date for the Midwest Family Gathering!  Hosted by Christy and Dave Whetstone!  Join families in the midwest region to spend time together talking, sharing stories, laughing, and learning […]

  • 2019 TD Five Boro Bike Tour

    New York City

    Many bicyclists say that biking has changed their lives. Team CdLS bicyclists say that they have changed the lives of others. Join the Cornelia de Lange Syndrome (CdLS) Foundation at […]

  • How to Address Challenging Behaviors Webinar

    This webinar will discuss: • Self-injury • Impulse control • Destruction of property • Determining the appropriate consequences • Treatment options (ABA, etc.) or professional resources for families Presenter: Julia […]

  • Northeast Region Family Gathering

    De Hart Community Center 120 Burnett Ave, Maplewood, NJ, United States

    Hosted by Karen Aschenbrenner and Robert Boneberg, parents of Alex

  • New England Charity Golf Tournament

    Ipswich Country Club 148 Country Club Way, Ipswich, MA, United States

    Join us and other families in New England to celebrate the 27th Annual CdLS Foundation New England Golf Tournament. The tournament takes place at the Ipswich Country Club in Ipswich, […]