One Love, One Heart 5K
Medlock Park, Decatur, GAOn December 8, Jim and Jen Pomfret will mark the twelfth year of what is called the “hottest 5K of December”. As the One Love, One Heart 5k slogan reads, […]
On December 8, Jim and Jen Pomfret will mark the twelfth year of what is called the “hottest 5K of December”. As the One Love, One Heart 5k slogan reads, […]
Save the date for the Southeast Region Family Gathering! Hosted by Angie Young and being held in Fort Myers, FL. Join families in the southeast region to spend time together […]
Hosted by Courtney Hegarty, AZ Regional Coordinator
(Serving individuals with CdLS who are 18 years old and younger) For more information contact Lynn Audette at LAudette@CdLSusa.org
Many runners say that running has changed their lives. Team CdLS runners say that they have changed the lives of others. Kick off the running season with the Cornelia de […]
Hosted by Fran Rissland, mom to Riley For more information contact Fran at fran_rissland@hotmail.com
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This webinar will discuss: • Clinical vs genetic testing • Various gene mutations associated with CdLS • Genetic testing that is available (including prenatally) • What are the benefits of […]
Save the date for the Midwest Family Gathering! Hosted by Christy and Dave Whetstone! Join families in the midwest region to spend time together talking, sharing stories, laughing, and learning […]