A place for all of your loved ones who live on in our hearts every day.
Anya Janoski
Anya was a teacher to so many of us: family, friends, teachers! She was funny, sneaky, and very challenging. Anya was tube-fed until 2 1/2 yrs old, walked at 5 years (when she weighed 20 lbs!,) and even though her mom is a Speech Pathologist !, she never talked. Anya...
Jocelyne Sharrard
Jocelyne passed just short of her 43 birthday. Born in 1978 at 1 lb. 3 oz she had been a fighter her entire life. Despite her disabilities she taught our family, and all who knew her, more about unconditional love and compassion than you could imagine. Give her a...
Jessica Doherty
Jessica was a perfectly wonderful little human being. She had a smile that melted my heart. It was unconditional love that bonded us forever. With the odds stacked against her, Jessica had to try much harder than "regular" folks to communicate and be understood....
Denise Volsic
Our sweet girl Denise was born in 1974 when not much was known about CdLS. Thank goodness for the formation of the CdLS Foundation which became a great source of information and support for families. She lived her entire 47 years with her parents and taught us much...
Adam Hasecke
Adam was born during the time when families were just beginning to find each other, first through the newsletter, and then through the Foundation. He was a mystery to his doctors, educators, therapists and family but everyone fell in love with him immediately! He was...
Curtis J. McCluney Jr.
Curtis was a joy to all who met and knew him. His infectious smile and sense of humor was contagious. He was a great listener and brought comfort in the form of a big hug, word or smile. He loved life. He loved to make jewelry, singing and working with his peers at...
Amber Gaines
Our beautiful Angel got to see the face of God on February 5th 2020. We were so blessed to have her 38 years! She fought a long hard battle for three weeks but God called her home. She was definitely the light and strength of our family. She adored her brother Paul...
Steven Shaffer
Steven was a great teacher to his doctors, therapists and teachers. His soul is old and wise. He was the center of our universe, but we didn't realize just how very important he was to all the people in his life, from caregivers to bus aide, until after he died. To...
Addilyn Czerwinski
Our sweet Addilyn Joelle, who we called ‘Addi Jo’, was born at 34 weeks weighing a whopping 3lbs 5oz and measured 15inches. She had the most beautiful head of dark brown hair and the most beautiful crystal blue eyes that sometimes looked green. She looked just like a...