In this class, we will explain in detail, current residential options: living with your parents, Section 8 housing, CILAS, group/supportive housing, skilled nursing facilities, and Special Needs Trust ownerships/paying rent. We will talk about determining the best fit for your child and how to fund the different options.
Many runners say that running has changed their lives. Team CdLS runners say that they have changed the lives of others. Join the Cornelia de Lange Syndrome (CdLS) Foundation at the world-renowned Bank of America Chicago Marathon Sunday, October 9, 2022, AND Agree to collect a minimum of no less than $1,250 (USD) if the entry […]
2022 Amber Gaines Memorial Golf Classic - Monday, October 10 This long standing Missouri golf outing is one of the CdLS Foundation's largest fundraisers. MCWP & PLM's 33rd Annual Amber Gaines Memorial Golf Classic is slated for Monday, October 10th at the Tapawingo National Golf Club. Participants will enjoy 18 holes of golf, brunch, dinner, […]
Join Team CdLS runners at the Baltimore Running Festival on Saturday, October 15, 2022. Here is a chance to run through the scenic Inner Harbor waterfront area, historic Federal Hill and charming Fells Point; all to raise money for children and adults with Cornelia de Lange Syndrome (CdLS). Not sure you can handle the full […]
What do we hear that scares families the most. We will be tracking the toughest questions from all classes, as well surveys done during the year. Come prepared with your questions. We are going to tackle the tough ones!
Everyone is welcome! Come and enjoy an afternoon of connecting, learning and fun for the whole family! Enjoy pony rides by Pony Town Parties, pumpkin decorating, and outdoor games. Fragile Footprints, a local family support organization, will host fun activities and games for siblings during the event. To learn more about this event and how […]
This Foundation-managed, free clinic occurs twice yearly at Greater Baltimore Medical Center (GBMC) in Baltimore, MD. Foundation Medical Director Antonie Kline, M.D., Director of Clinical Genetics at the Harvey Institute for Human Genetics at GBMC, has led these clinics since 2001. Any individual age 12 or older with CdLS can attend with their families. Presentations […]
Congratulations! We have worked all year to take the next steps. But it is easy to get caught in THE GAP. Sometimes when we are working toward a big goal, we only see all that is still in front of us. Let’s turn around and review the whole year and see how far you have […]
Losing a loved one with CdLS at any age can be life-altering. Parents, siblings, relatives, and friends feel a tremendous loss and often have difficulty understanding why. It is so important that we as a community surround them with support and unconditional love. Although they have lost their child, grandchild, or sibling – they still […]
