With the National Family Conference approaching in just under 10 months, now is the time to plan and save. Tasha Howland, Life Coach and mom to Peyton, will offer tips and strategies that you may find helpful to cover your expenses for Conference. She will also offer some fun ideas to help you get started […]
Join us for the 10th Annual Brew & BBQ for CdLS. Tickets: $35 in advance/$40 at the door Includes BBQ, 2 beer tickets & LIVE music. Cash bar available. Bid on our silent auction both online and LIVE! @ www.biddingowl.com/brewandbbqforcdls
Many runners say that running has changed their lives. Team CdLS runners say that they have changed the lives of others. Join the Cornelia de Lange Syndrome (CdLS) Foundation at the world-renowned Bank of America Chicago Marathon Sunday, October 13, 2019 The CdLS Foundation will be there with you every step of the way, providing […]
Virtual coaching, tee shirt, pre-race dinner with pizza and pasta and a view of beautiful Baltimore!
Mary Anne Ehlert will be presenting an in depth look at what Retiring for 3 means: How much do you need and how much does your child need? When should you take Social Security? Does Medicare matter enough to take your Social Security sooner? What will your child get in Social Security and when? What […]
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TEAM CdLS REGISTRATION BEGINS WEDNESDAY, FEBRUARY 27, 2019 Contact Kristi Larson to express your intentions A smile from a child with CdLS inspires Team CdLS runners to turn their love of the sport into a passion to help raise funds for the hundreds of individuals that have this little- known syndrome. There is no cure. […]
St. Louis Children's Hospital in St. Louis, Missouri will host their second Cornelia de Lange Syndrome clinic. The specialties in attendance will include the following: genetics, neurology, ophthalmology, audiology/ear, nose and throat, and psychology. For further details, contact Whitney Rinaldi, BSW, at familyservice@CdLSusa.org
