Join the Local Planning Committee for a virtual race benefiting CdLS. Cornelia de Lange Syndrome or CdLS is a rare genetic syndrome that causes a broad range of physical, cognitive, and medical challenges for the diagnosed individual. Every two years the CdLS Foundation hosts a Family Conference where individuals with CdLS and their families from […]
Please join us for a California Virtual Family Gathering. Hosted by the CdLS Foundation Family Service and RCs Karen Prada, Melissa Staggs, Susan Drexler and Dena Davis. Send a photo via email if you would like your child/family in the slide show. Saturday, June 5th, 11 a.m. - 1 p.m. PST. This gathering will be […]
A very important component of the Future Life Care Plan is the Special Needs Trust. The careful selection of those who will make sure your goals for the Special Needs Trust implementation is key to the smooth transition and the future happiness and safety of your family member. Making sure your Successor Trustees are qualified, […]
Come and Celebrate with us! Join members of the CdLS Foundation Board of Directors and staff as we salute 40 years of supporting our families, while raising money and enjoying the beautiful and scenic Farmington Valley Greenway Rail Train in Avon, CT. You won't want to miss this very special 40th Kick Off event on […]
Hosted by Charyn Beaumont, Families can stay the whole time or just drop by if they would like. It will be located under the red and white striped tent at Heritage Park in Wheeling. The sign up genius created is where you can sign up to bring desserts/drinks/snacks. Deli/Sub sandwiches will be provided.
Having a sibling with special needs is a reality many children are born into. The advantages to having a sibling with special needs are numerous and include being more empathetic, more responsible and more resilient. However, these siblings also shoulder tremendous burdens that are not often or easily discussed. We will talk about the role siblings […]
Finding the transition program that best meets the needs of your child with a disability is so important. We will discuss the different types of programs, what type of program is best for your child, what types of community-based programs are out there, what programs will benefit your child, and how can you fund the […]
We will continue discussing the importance of The Dream Team and choosing the right people for the right job to ensure your child’s future success! We will talk more in-depth about how to build this team and keep moving them forward - making it easier for your future caregiver and educating your trustee. We will […]
The CdLS Foundation New England Golf Classic is set for Monday, September 27, 2021, in Ipswich, MA. Registration and breakfast begin at 7:45am with a 9am shotgun start, followed by cocktails, lunch, awards and prizes at 1:30pm. We missed this event last Spring due to the pandemic, and decided this year to move the event […]
Virtual coaching, tee shirt, pre-race dinner with pizza and pasta and a view of beautiful Baltimore!
