Grief whether anticipatory or in bereavement is a shared experience for the family and yet each member will likely experience and process grief in different ways, over different periods of […]

Join families from California for a CdLS Foundation Sponsored Family Gathering. Graciously hosted by Traci Weber and Kimberly Ingold Saturday, March 25, 2023 11–3 PM PST Harvard Community Center 14701 […]

This Foundation-managed, free clinic occurs twice yearly at Greater Baltimore Medical Center (GBMC) in Baltimore, MD. Foundation Medical Director Antonie Kline, M.D., Director of Clinical Genetics at the Harvey Institute […]

So much of our ability to access medical and behavioral health care in the U.S. depends on a family's health insurance. Whether your health coverage is offered by your employer, […]

Anyone, from infancy through adulthood, can experience medical trauma. Caregivers can too. Understanding what medical trauma is and knowing the signs can help you get support for your child and […]

CdLS Awareness Day is observed each year in order to shed light on this often misdiagnosed, little-known genetic syndrome. Parents, volunteers and others request official Awareness Day proclamations from governors […]

Plans are underway for a fantastic golf fundraiser at Ipswich Country Club for the 30th Annual New England Golf Classic to be held on Monday, MAY 22, 2023! This popular […]

Join families from Illinois for a CdLS Foundation Sponsored Family Gathering. Graciously hosted by Charyn Beaumont, June 25, 2023 2-5pm PM CST at the Burning Bush Community Center in Mount […]

Join us for a CdLS Family GatheringSaturday August 5, 202310:30 - 12:30Christ Community Church20600 W 119th StreetOlathe, KS 66061Hosted by Ashley and Matt Franck, parents to Sage. RSVP mattandashley28@gmail.comA light […]