Families are asked to bring a dish to share potluck style. Everyone is welcome! Please RSVP by 7.19.19 with the number of adults/children that will be attending You may email […]

This webinar will: Identify malrotation Discuss signs of volvulus Discuss bowel obstruction Discuss pancreatitis Review treatment/care approaches to the above Presenter: Carol Potter, MD, Nationwide Children's Hospital

Hosted by the Rauba Family For more information contact Lynn Audette at families@CdLSusa.org

With the National Family Conference approaching in just under 10 months, now is the time to plan and save. Tasha Howland, Life Coach and mom to Peyton, will offer tips […]

Join us for the 10th Annual Brew & BBQ for CdLS. Tickets: $35 in advance/$40 at the door Includes BBQ, 2 beer tickets & LIVE music. Cash bar available. Bid […]

Many runners say that running has changed their lives. Team CdLS runners say that they have changed the lives of others. Join the Cornelia de Lange Syndrome (CdLS) Foundation at […]

Virtual coaching, tee shirt, pre-race dinner with pizza and pasta and a view of beautiful Baltimore!