Events

Join us at this year’s Denise D’Ascenzo Foundations annual Walk to Fight Rare Diseases. The event will take place at Quinnipiac University, Burt Khan Gym at 10AM. There is plenty […]

The next CdLS Foundation Parent Support Group is scheduled for May 7, and we’d love to welcome you. 📅 May 7, 2026 🕖 7:00–8:15 p.m. ET 📍 Zoom (link provided […]

International CdLS Awareness Day is an opportunity for our community and the world to come together to raise awareness about CdLS, a rare and often misunderstood genetic spectrum disorder. This […]

Join families from Missouri and surrounding states for a CdLS Foundation-sponsored Family Gathering. Graciously hosted by the Sprehe Family, parents of Izaak. Saturday, May 9, 2026 11 a.m. - 3 […]

Join families from Texas for a CdLS Foundation-sponsored Family Gathering. Graciously hosted by the Hendricks and Woods/Jacob families. Saturday, May 30, 2026 10:30 a.m. - 1:30 p.m. C.T. Victory Forest […]

The next CdLS Foundation Parent Support Group is scheduled for June 4, and we’d love to welcome you. 📅 June 4, 2026 🕖 7:00–8:15 p.m. ET 📍 Zoom (link provided […]

Join families from North Carolina and surrounding states for a CdLS Foundation-sponsored Family Gathering. Graciously hosted by the Radionov Family, parents of Kaleb. June 13, 202611 a.m. - 4 p.m. […]

The next CdLS Foundation Parent Support Group is scheduled for July 2, and we’d love to welcome you. 📅 July 2, 2026 🕖 7:00–8:15 p.m. ET 📍 Zoom (link provided […]

The next CdLS Foundation Parent Support Group is scheduled for August 8, and we’d love to welcome you. 📅August 8, 2026 🕖 7:00–8:15 p.m. ET 📍 Zoom (link provided upon […]

The CdLS Foundation, in partnership with Shriners Children’s Salt Lake City, is pleased to announce a Multi-Specialty Clinic for children with Cornelia de Lange Syndrome (CdLS) on August 13, 2026, […]