The CdLS Foundation will once again have a fantastic Team CdLS running in Chicago! The 2023 Bank of America Chicago Marathon has been officially scheduled for October 8. Team CdLS will converge on Chicago this Fall, and to run for our precious children and adults with CdLS and their families. Team CdLS - Chicago is in the process of building our team of runners for the big event. Spots are going fast. Register today. If you are not a runner,…

The CdLS Foundation’s longest running major event - the MCWP & PLM Amber Gaines Memorial Golf Classic – is kicking off its 35th year on Monday, October 9, 2023, at the beautiful Tapawingo National Golf Course in St. Louis, MO. Registration and lunch begin at 11 AM with a 12:30 PM shotgun start, followed by cocktails, dinner, and prizes at 5:30 PM. Don’t miss the best golf event in the Midwest!

Sponsored by: Protected Tomorrows’ 2023 Parent University™ Speaker: Mary Anne Ehlert, President & Founder, Protected Tomorrows, Inc. Description: Protected Tomorrows’ 2023 Parent University™ brings you our tenth in a series of educational webinars… “Financial Planning for the Whole Family: Now and In the Future” Our financial planning needs to be different. We have to take care of ourselves, our whole family, sometimes our extended family, and we have to do it during our working years, our retired years, and even…

Join Team CdLS - Baltimore for a chance to run through the scenic Inner Harbor waterfront area, historic Federal Hill and charming Fells Point; all to raise money for children and adults with Cornelia de Lange Syndrome (CdLS).Team CdLS - Baltimore is in the process of building our team of runners for the big event. Spots are going fast. Register today. If you are not a runner, but want to get involved, contact Sherry Waitsman for ideas.

Windhaven Meadows Park - Pavilion 10 a.m. - 2 p.m. CDT 5400 Windhaven ParkwayPlano, TX 75093 Hosted by Tiffany Hendricks, mom to Tristen and Olivia; Bailey Woods, mom to Carson.

Join us for the 2023 Walk for Will & Hope on Sunday, October 15, at Stony Creek Metropark in Shelby Township. We’ll walk two miles to raise funds for the CdLS Foundation. The walk is named after Will and Hope Kurth, who were both born with Cornelia de Lange Syndrome (CdLS), a rare genetic condition that affects growth, development, and other areas. Based in Connecticut, the CdLS Foundation is a nonprofit that helps those affected by CdLS and their families.…

Cutty’s Okoboji Resort Club 12pm – 5pm. 1528 Highway 86 Spirit Lake, IA 51360 Hosted by Kate Shaw, sister to Kimberly.

This Foundation-managed, free clinic occurs twice yearly at Greater Baltimore Medical Center (GBMC) in Baltimore, MD. Foundation Medical Director Antonie Kline, M.D., Director of Clinical Genetics at the Harvey Institute for Human Genetics at GBMC, has led these clinics since 2001. Any individual age 12 or older with CdLS can attend with their families. Presentations on the following topics from CdLS Clinical Advisory Board members: Behavioral Psychology, Child Psychiatry, Gastroenterology, Genetics, Gynecology, Neurology, Pediatric Ophthalmology, Speech Pathology. Live Q&A with…