Bulls and Barrels Series

Saddle up and join us! Only two Bulls and Barrles Rodeos left and you dont want to miss the fun and excitement. Hollywood Harris will be there to entertain the crowd. Come out, have some fun and support the CdLS community. At Carters Arena in Chiefland, FL we have some rodeo fun while raising awareness […]

Wisconsibsread Book Club

The WisconSibsREAD book club will meet for their monthly book discussion, laughter, and sibling-to-sibling bonding on Wednesday, November 20th. This month’s book is Rosemary: The Hidden Kennedy Daughter by Kate Clifford Larson. This book chronicles the life of Rosemary Kennedy, exploring her struggles with intellectual disabilities and the impact of her family’s decisions on her […]

Parent University: LEARNING HOW TO DEAL WITH “THE GAP”

“The Gap” is our desire to get to PERFECTION versus recognizing HOW FAR WE HAVE COME! We will use some exercises to walk out of the class with a positive feeling about our SUCCESSES! And…a reality check of what we should work toward in 2025. Register now

December Virtual Meet Up, Casual “Pop-In”

Save the date for our monthly virtual Meet Up which is of a more casual style focused on connection, collaboration and support. Bring your questions or life experience to the table around the Holidays! CaliforniaSibs is the official California state chapter of the nationwide Sibling Leadership Network (SLN). Our Mission is to partner with Sibs […]

Bulls and Barrels Series

This is it! The final Bulls and Barrels Event of the seriesPrize Buckles will be awarded, and Hollywood Harris will be there to entertain the crowd– you don’t want to miss this! Adults $10, Students $5 and 5 and under are free At Carters Arena in Chiefland, FL. Have some rodeo fun while raising awareness […]

International CdLS Remembrance Day

Losing a loved one with CdLS at any age can be life-altering. Parents, siblings, relatives, and friends feel a tremendous loss and often have difficulty understanding why. It is so important that we as a community surround them with support and unconditional love. Although they have lost their child, grandchild, or sibling – they still […]

Being My Child’s Protector, Advocate, and Decision-Maker in the NICU Webinar

Anticipating the birth of a child can be one of the happiest times for parents. But when babies have life-threatening medical issues and begin their lives in the NICU, everything can change. For some parents, this may mean navigating a new role: learning how to navigate the NICU and communicate with the medical team; figuring […]

Supporting Your Family’s Wishes: The Value of Advance Directives and Preparing for Complex Medical Decisions Webinar

Please join us to explore how completing healthcare advance directives for/with your child can support your family’s goals and wishes. We will discuss the importance of discussing and documenting healthcare wishes upstream of an emergent/urgent medical event, medical implications of and quality-of-life considerations related to advance directives, and currently available directives. Presented by Fiona Sampey […]

Multi-Specialty Clinic for children with CdLS at Shriners Children’s Salk Lake City

Multi-Specialty Clinic for children with CdLS will be held on March 12, 2025, at Shriners Children's Salt Lake City. The CdLS Foundation and Shriners Children's Salt Lake City have a long-standing partnership. We are truly grateful to work together. The clinic is a wonderful opportunity to meet with multiple doctors with expertise in CdLS all […]