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Today

  • International Siblings Day

    International Siblings Day is a special time to celebrate the unique, lifelong bond between brothers and sisters. Siblings of individuals with CdLS play an incredible role, offering love, support, advocacy, […]

  • Adolescent and Adult Multidisciplinary Clinic

    Harvey Institute for Human Genetics, Greater Baltimore Medical Center 6701 N. Charles St., Suite 2326, Baltimore, MD, United States

    This Foundation-managed, free Cornelia de Lange Syndrome (CdLS) clinic is held twice each year at Greater Baltimore Medical Center (GBMC) in Baltimore, Maryland. Led since 2001 by Foundation Medical Director […]

  • Team CdLS Walk to Fight Rare Diseases

    Join us at this year’s Denise D’Ascenzo Foundations annual Walk to Fight Rare Diseases. The event will take place at Quinnipiac University, Burt Khan Gym at 10AM. There is plenty […]

  • 2026 International CdLS Awareness Day

    International CdLS Awareness Day is an opportunity for our community and the world to come together to raise awareness about CdLS, a rare and often misunderstood genetic spectrum disorder. This […]

  • Midwest Family Gathering- Missouri

    Join families from Missouri and surrounding states for a CdLS Foundation-sponsored Family Gathering. Graciously hosted by the Sprehe Family, parents of Izaak. Saturday, May 9, 2026 11 a.m. - 3 […]

  • Southwest Family Gathering- Texas

    Join families from Texas for a CdLS Foundation-sponsored Family Gathering. Graciously hosted by the Hendricks and Woods/Jacob families. Saturday, May 30, 2026 10:30 a.m. - 1:30 p.m. C.T. Victory Forest […]

  • Southeast Family Gathering- North Carolina

    Join families from North Carolina and surrounding states for a CdLS Foundation-sponsored Family Gathering. Graciously hosted by the Radionov Family, parents of Kaleb. June 13, 202611 a.m. - 4 p.m. […]