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The next CdLS Foundation Parent Support Group is scheduled for April 2, and we’d love to welcome you. đź“… April 2, 2026 đź•– 7:00–8:15 p.m. ET đź“Ť Zoom (link provided upon registration) đź’ˇ Topic: Bring Your Loved One This confidential, parent-only space offers time to: -Share what’s on your heart — or just listen -Learn […] |
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International Siblings Day is a special time to celebrate the unique, lifelong bond between brothers and sisters. Siblings of individuals with CdLS play an incredible role, offering love, support, advocacy, and friendship in truly unique ways. We invite you to join us in honoring these amazing relationships by sharing photos of you and your sibling […] |
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This Foundation-managed, free Cornelia de Lange Syndrome (CdLS) clinic is held twice each year at Greater Baltimore Medical Center (GBMC) in Baltimore, Maryland. Led since 2001 by Foundation Medical Director Antonie Kline, M.D., Director of Clinical Genetics at the Harvey Institute for Human Genetics at GBMC, the clinic provides families with direct access to nationally […] |
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June Parent University™ Class Presented by Protected Tomorrows Class Five ABLE Accounts: The Basics and What to Use When June 11, 2026 12:00 – 1:00 p.m. CST In this exciting session about Able Accounts, Protected Tomorrows will cover: The basics of ABLE, how ABLE differs by state, and how to stay out of trouble. What […] |
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Join us at this year’s Denise D’Ascenzo Foundations annual Walk to Fight Rare Diseases. The event will take place at Quinnipiac University, Burt Khan Gym at 10AM. There is plenty of free parking, pizza truck for all participants, magic show, children’ activities, musical entertainment, and much more. Join the team, have some fun, meet other […] |
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