CdLS Awareness Day is observed each year in order to shed light on this often misdiagnosed, little-known genetic syndrome. Parents, volunteers and others request official Awareness Day proclamations from governors […]

In this class, we will discuss how to prepare siblings and future caregivers so that they feel comfortable taking over the role. Let’s bring up the tough topics. We as […]

Plans are underway for a fantastic golf fundraiser at Ipswich Country Club for the 29th Annual New England Golf Classic to be held on Monday, MAY 23, 2022! That's right […]

Find out how to start your peer-to-peer fundraising and join CdLS Foundation families, staff and volunteers as we walk, run or bike an easy stint along one of the scenic […]

In this class, we will talk about taking vacations with your special needs child. How to plan better. Ideas so the whole family can have fun! How do we plan […]

We will discuss what your Child’s Dream Team should consist of, such as your legal team, your financial team, medical support, recreation coordinators and the Coaches (the caregivers and guardians), […]

Why is transitioning each child so different? In this class, we will discuss what happens when the bus stops coming. We will talk about day programming, special recreation services, job […]

Why is transitioning each child so different? In this class, we will discuss what happens when the bus stops coming. We will talk about day programming, special recreation services, job […]

In this class, we will explain in detail, current residential options: living with your parents, Section 8 housing, CILAS, group/supportive housing, skilled nursing facilities, and Special Needs Trust ownerships/paying rent. […]

Many runners say that running has changed their lives. Team CdLS runners say that they have changed the lives of others. Join the Cornelia de Lange Syndrome (CdLS) Foundation at […]