The CdLS Foundation Back-to-School Family Kickoff will be a weeklong virtual experience designed to help CdLS families begin the school year — and the next season of care — with practical tools, trusted guidance, and meaningful connection. 

While the event is timed around the back-to-school season, the content will be intentionally broader than school alone. Families in our community are navigating many different stages of life: early childhood, school-age years, transition planning, adulthood, residential placement decisions, medical complexity, grief, and life after loss. This kickoff gives the Foundation an opportunity to meet families where they are while reinforcing that the CdLS Foundation remains a trusted source of information, connection, and support across the lifespan.

The week will include a mix of pre-recorded messages, expert-led sessions, gene-specific workshops, veteran parent panels, and real-life family conversations. Families will be invited to participate in the sessions most relevant to their needs, with opportunities to submit questions in advance and connect with others who understand their journey. 

The event will be offered at no cost to families. Throughout the week, the Foundation will include gentle, mission-aligned opportunities for attendees to make a donation if they are able, helping ensure that programs like this remain accessible to every CdLS family. 

Register now, by visiting: https://events.ringcentral.com/events/cdls-back-to-school-2026/registration