Northeast Family Gathering
August 29 @ 2:00 pm - 6:00 pm
Graciously hosted by:
Jennifer and Nicholas Arp, parents of Jenna
Saturday, August 29, 2026
2:00 p.m. – 6:00 p.m. ET
The Arp Home
Address will be provided in the confirmation email
Rexford, NY 12148
Bring your swimsuit and towel to enjoy the pool!
Bring the whole family and join us for a casual backyard get-together! You’ll have the chance to meet families in the area who share similar challenges and triumphs as parents of children with Cornelia de Lange Syndrome (CdLS).
Members of the CdLS Foundation staff will be in attendance.
Pizza, sub sandwiches, and beverages provided. Please bring a snack, side dish, or dessert to share.