Calendar of Events

Whether you're looking for the next family gathering, a golf tournament, or just want to see what's going on in your region, the calendar of events has all the what, when and where you need.

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Northeast Family Gathering

August 29 @ 2:00 pm - 6:00 pm
Hosts: Jennifer and Nicholas Arp
Person with CdLS: Jenna Arp
August 29th
2 – 6 p.m. ET
Location:
The Arp Home
9B Sandpiper Lane
Rexford, NY
Bring your swimsuit and towel to enjoy the pool!
Bring the whole family and join us for a casual backyard get-together! You’ll have the chance to meet families in the area who share similar challenges and triumphs as parents of children with Cornelia de Lange Syndrome (CdLS). Pizza, sub sandwiches, and beverages provided. Please bring a snack or dessert to share.

Details

Date:
August 29
Time:
2:00 pm - 6:00 pm