• Nationwide Champions for CdLS Golf Tournament

    Only together we can continue reaching out, providing help, and giving hope to individuals with CdLS and their families. Thank you for your donation to this year's Nationwide Campions for CdLS Golf Tournament! Every gift no matter the amount makes a positive impact in our CdLS Community. If you would like to play a round […]

  • Northeast Family Gathering

    Graciously hosted by: Jennifer and Nicholas Arp, parents of Jenna Saturday, August 29, 2026 2:00 p.m. - 6:00 p.m. ET The Arp Home Address will be provided in the confirmation email Rexford, NY 12148 Bring your swimsuit and towel to enjoy the pool! Bring the whole family and join us for a casual backyard get-together! […]

  • CdLS Foundation September Virtual Support Group for Parents

    The next CdLS Foundation Parent Support Group is scheduled for September 3, and we’d love to welcome you. 📅 September 3, 2026 🕖 7:00–8:15 p.m. ET 📍 Zoom (link provided upon registration) 💡 Topic: Eligibility Supports This confidential, parent-only space offers time to: -Share what’s on your heart — or just listen -Learn from other […]

  • September Parent University™ Class Presented by Protected Tomorrows

    September Parent University™ Class Presented by Protected Tomorrows Class Nine The Many Faces of Protection September 10, 2026 12:00 – 1:00 p.m. CST In this exciting session, Protected Tomorrows will cover: • How do you best protect what you’ve built for now and for the future? • Do you have the right kind of protection? […]

  • Northwest Region Family Gathering- Northern California

    Join families from California and surrounding states for a CdLS Foundation-sponsored Family Gathering. Graciously hosted by the Stagg family, Parents to AJ Saturday, September 19, 2026 12:00 - 4:00 p.m. PT Location 444 Aviation Blvd. Santa Rosa, CA 95403 Bring the whole family and join us! You'll have the chance to meet families in the […]

  • CdLS Foundation Back-to-School Kickoff

    The CdLS Foundation Back-to-School Family Kickoff will be a weeklong virtual experience designed to help CdLS families begin the school year — and the next season of care — with practical tools, trusted guidance, and meaningful connection.  While the event is timed around the back-to-school season, the content will be intentionally broader than school alone. […]

    Free
  • CdLS Foundation October Virtual Support Group for Parents

    The next CdLS Foundation Parent Support Group is scheduled for October 1, and we’d love to welcome you. 📅 October 1, 2026 🕖 7:00–8:15 p.m. ET 📍 Zoom (link provided upon registration) This confidential, parent-only space offers time to: -Share what’s on your heart — or just listen -Learn from other parents who truly understand […]

  • October Parent University™ Class Presented by Protected Tomorrows

    October Parent University™ Class Presented by Protected Tomorrows Class Ten Employment: Bringing a Sense of Purpose October 8, 2026 12:00 – 1:00 p.m. CST In this exciting session about employment, Protected Tomorrows will cover: • What types of jobs are available for my child in the future? How do I help prepare my child for […]

  • 2026 Bank of America Chicago Marathon

    Cheer on and support our amazing team of 33 athletes from all over the country and Mexico when Team CdLS participates in their 27th year at the Bank of America Chicago Marathon. This talented and diverse group of athletes will meet on October 11th and run 26.2 miles for those who cannot all while raising […]

  • 38th Annual Amber Gaines Memorial Golf Classic

    The Amber Gaines Memorial Golf Classic is considered one of the largest fundraising events for the CdLS Foundation. We have raised over one million dollars since the tournament’s inception 38 years ago. We hope you can join us as a participant, sponsor, volunteer or supporter. With your participation and support, we can continue to reach […]