• Nationwide Champions for CdLS Golf Tournament

    Only together we can continue reaching out, providing help, and giving hope to individuals with CdLS and their families. Thank you for your donation to this year's Nationwide Campions for CdLS Golf Tournament! Every gift no matter the amount makes a positive impact in our CdLS Community. If you would like to play a round […]

  • Jump Into July Stop and Shop Community Bag Program

    Jump into July and support the CdLS Foundation For the entire month of July, the CdLS Foundation has been selected by store leadership to benefit from Stop & Shop’s Community Bag Program. This program makes it easy for shoppers to contribute to their local nonprofits. Whenever a $2.50 reusable Community Bag is purchased at the […]

  • Illinois Family Gathering

    Join families from Illinois and surrounding states for a CdLS Foundation Family Gathering. Graciously hosted by: The Beaumont Family, parents of Annie Saturday, August 1, 2026 2:00 p.m. - 5:00 p.m. CT Burning Bush Community Center 1313 Burning Bush Ln. Mount Prospect, IL 60056 You’ll have the chance to meet families in the area who […]

  • CdLS Foundation August Virtual Support Group for Parents

    The next CdLS Foundation Parent Support Group is scheduled for August 6, and we’d love to welcome you. 📅August 6, 2026 🕖 7:00–8:15 p.m. ET 📍 Zoom (link provided upon registration) 💡 Topic: Bring Your Loved One This confidential, parent-only space offers time to: -Share what’s on your heart — or just listen -Learn from […]

  • August Parent University™ Class Presented by Protected Tomorrows

    August Parent University™ Class Presented by Protected Tomorrows Class Eight Education: Back-to-School Tips August 13, 2026 12:00 – 1:00 p.m. CST “School” can mean many things. In this exciting session about back-to-school tips, Protected Tomorrows will cover: • If your child is young, what is an IEP? • If your child is older, what can […]

  • Northeast Family Gathering

    Graciously hosted by: Jennifer and Nicholas Arp, parents of Jenna Saturday, August 29, 2026 2:00 p.m. - 6:00 p.m. ET The Arp Home Address will be provided in the confirmation email Rexford, NY 12148 Bring your swimsuit and towel to enjoy the pool! Bring the whole family and join us for a casual backyard get-together! […]

  • CdLS Foundation September Virtual Support Group for Parents

    The next CdLS Foundation Parent Support Group is scheduled for September 3, and we’d love to welcome you. 📅 September 3, 2026 🕖 7:00–8:15 p.m. ET 📍 Zoom (link provided upon registration) 💡 Topic: Eligibility Supports This confidential, parent-only space offers time to: -Share what’s on your heart — or just listen -Learn from other […]

  • September Parent University™ Class Presented by Protected Tomorrows

    September Parent University™ Class Presented by Protected Tomorrows Class Nine The Many Faces of Protection September 10, 2026 12:00 – 1:00 p.m. CST In this exciting session, Protected Tomorrows will cover: • How do you best protect what you’ve built for now and for the future? • Do you have the right kind of protection? […]

  • Northwest Region Family Gathering- Northern California

    Join families from California and surrounding states for a CdLS Foundation-sponsored Family Gathering. Graciously hosted by the Stagg family, Parents to AJ Saturday, September 19, 2026 12:00 - 4:00 p.m. PT Location 444 Aviation Blvd. Santa Rosa, CA 95403 Bring the whole family and join us! You'll have the chance to meet families in the […]

  • CdLS Foundation Back-to-School Kickoff

    Join the CdLS Foundation for a FREE week-long virtual event designed for parents, caregivers, grandparents, and family members of individuals with CdLS. Throughout the week, families will hear from internationally recognized CdLS experts, participate in educational and gene-specific workshops, connect with other families, and gain practical strategies for navigating medical, educational, behavioral, and everyday challenges. […]