Champions for CdLS Golf Tournament

Exciting news! The New England Golf Classic is going virtual!! Join us for an interactive, new way to continue raising awareness and funds and keeping the tradition going. You can play on any course, with anyone, at any time between May 10 and August 31, 2025, and compete with others across the country. You will have […]

CdLS Foundation-Sponsored Northeast Family Gathering

Join families from New York and the Northeast for a CDLS Foundation-sponsored Family Gathering.  Saturday, July 12, 2025 2 – 6 p.m. ET       The Arp Home 9B Sandpiper Lane Rexford, NY (9B is on the white mailbox with a long driveway) Graciously Hosted by Jennifer and Nicholas Arp, parents to Jenna. Bring […]

Virtual Support Groups for Parents

The CdLS Foundation is pleased to offer Virtual Support Groups for Parents, providing a consistent opportunity to connect, share, and support one another. 🗓 Thursday, August 7, 2025 🕖 7:00 – 8:00 p.m. ET We believe no parent should walk this path alone at the CdLS Foundation. As caregivers, you are the backbone of our […]

Virtual Support Groups for Parents

The CdLS Foundation is pleased to offer Virtual Support Groups for Parents, providing a consistent opportunity to connect, share, and support one another. 🗓 Thursday, September 4, 2025 🕖 7:00 – 8:00 p.m. ET We believe no parent should walk this path alone at the CdLS Foundation. As caregivers, you are the backbone of our […]

A Lifetime of Moments: Building Memories and Living your Child’s Legacy Together

Time together making memories as a family may feel especially precious when the child is living with a life-threatening medical condition. Making memories and sharing experiences that become part of the child’s legacy and the family’s treasure box can take many forms and can happen anytime: special occasions or a typical weekday. There is meaning […]

Virtual Support Groups for Parents

The CdLS Foundation is pleased to offer Virtual Support Groups for Parents, providing a consistent opportunity to connect, share, and support one another. 🗓 Thursday, October 2, 2025 🕖 7:00 – 8:00 p.m. ET We believe no parent should walk this path alone at the CdLS Foundation. As caregivers, you are the backbone of our […]

Parent University: Sibling Panel – Let’s Talk About What Sibs Need to Know, When They Need to Know It, and Why. Let’s Hear Experiences From Siblings Themselves – The Future Without Us Peace of Mind

Many of us are going to count on the siblings or other family members to step into our shoes. What jobs are they taking on? Do they feel like we have prepared them? What do they want to know yet? Have they already experienced the responsibilities? Have we as parents even talked with them, and […]