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The next CdLS Foundation Parent Support Group is scheduled for May 7, and we’d love to welcome you. 📅 May 7, 2026 🕖 7:00–8:15 p.m. ET 📍 Zoom (link provided upon registration) 💡 Topic: Future Planning This confidential, parent-only space offers time to: -Share what’s on your heart — or just listen -Learn from other […] |
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International CdLS Awareness Day is an opportunity for our community and the world to come together to raise awareness about CdLS, a rare and often misunderstood genetic spectrum disorder. This meaningful day is about more than awareness; it’s about connection, education, and hope. Families, advocates, healthcare professionals, and supporters unite to share stories, spread knowledge, […]
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Join families from Missouri and surrounding states for a CdLS Foundation-sponsored Family Gathering. Graciously hosted by the Sprehe Family, parents of Izaak. Saturday, May 9, 2026 11 a.m. - 3 p.m. CT Millennium Park 2 Barnes W Drive Creve Coeur, MO 63141 Celebrate International CdLS Awareness Day with us! Bring the whole family and join […] |
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Join families from Texas for a CdLS Foundation-sponsored Family Gathering. Graciously hosted by the Hendricks and Woods/Jacob families. Saturday, May 30, 2026 10:30 a.m. - 1:30 p.m. C.T. Victory Forest Community Center 3427 Hemphill Street Fort Worth, TX 76110 Family Gatherings are planned with your whole family in mind. CdLS Foundation staff and Clinical Advisory […] |
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