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X-WR-CALDESC:Events for CdLS Foundation
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DTSTART;TZID=America/Detroit:20260507T190000
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UID:9925-1778180400-1778184900@www.cdlsusa.org
SUMMARY:CdLS Foundation May Virtual Support Group for Parents
DESCRIPTION:The next CdLS Foundation Parent Support Group is scheduled for May 7\, and we’d love to welcome you. \n📅 May 7\, 2026\n🕖 7:00–8:15 p.m. ET\n📍 Zoom (link provided upon registration)\n💡 Topic: Future Planning \nThis confidential\, parent-only space offers time to:\n-Share what’s on your heart — or just listen\n-Learn from other parents who truly understand\n-Feel seen\, supported\, and less alone \nEven if you’re not sure you’ll feel like talking\, you are welcome just as you are. We would be honored to have you with us. \nIf you have any questions\, please don’t hesitate to contact Family Service at familyservicesteam@CdLSusa.org or call the Foundation at 888.753.2357. \nRegister here.
URL:https://www.cdlsusa.org/event/cdls-foundation-may-virtual-support-group-for-parents/
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DTSTART;VALUE=DATE:20260509
DTEND;VALUE=DATE:20260510
DTSTAMP:20260408T110433
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UID:9896-1778284800-1778371199@www.cdlsusa.org
SUMMARY:2026 International CdLS Awareness Day
DESCRIPTION:International CdLS Awareness Day is an opportunity for our community and the world to come together to raise awareness about CdLS\, a rare and often misunderstood genetic spectrum disorder. This meaningful day is about more than awareness; it’s about connection\, education\, and hope. \nFamilies\, advocates\, healthcare professionals\, and supporters unite to share stories\, spread knowledge\, and amplify the voices of individuals living with CdLS. From going live on social media and sharing educational flyers to presenting at schools\, civic groups\, and medical offices\, every action helps build understanding and awareness. Many community members also reach out to local media\, host gatherings\, launch social media campaigns\, and organize fundraisers to support research and family services. \nTogether\, we can help promote earlier diagnosis\, better resources\, and a more compassionate world for individuals with CdLS and their families. Every share\, every conversation\, and every act of advocacy makes a difference. \nFor more information\, contact Gabrielle Nadeau.
URL:https://www.cdlsusa.org/event/2026-international-cdls-awareness-day/
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DTSTART;TZID=America/Detroit:20260509T110000
DTEND;TZID=America/Detroit:20260509T150000
DTSTAMP:20260408T110433
CREATED:20260211T202247Z
LAST-MODIFIED:20260317T173730Z
UID:10006-1778324400-1778338800@www.cdlsusa.org
SUMMARY:Midwest Family Gathering- Missouri
DESCRIPTION:Join families from Missouri and surrounding states for a CdLS Foundation-sponsored Family Gathering. \nGraciously hosted by the Sprehe Family\, parents of Izaak. \nSaturday\, May 9\, 2026\n11 a.m. – 3 p.m. CT \nMillennium Park\n2 Barnes W Drive\nCreve Coeur\, MO 63141\nCelebrate International CdLS Awareness Day with us! Bring the whole family and join us! You’ll have the chance to meet families in the area who share similar challenges and triumphs as parents of children with Cornelia de Lange Syndrome (CdLS).\n\n  \nSPECIAL GUESTS: CdLS Foundation staff will be in attendance \nLUNCH WILL BE PROVIDED. Pizza will be provided\, and families are asked to bring a side dish\, snack\, beverage\, or dessert to share. \n\n\nRegister Here.
URL:https://www.cdlsusa.org/event/midwest-family-gathering-missouri/
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DTSTART;VALUE=DATE:20260530
DTEND;VALUE=DATE:20260531
DTSTAMP:20260408T110433
CREATED:20260211T202507Z
LAST-MODIFIED:20260323T202613Z
UID:10007-1780099200-1780185599@www.cdlsusa.org
SUMMARY:Southwest Family Gathering- Texas
DESCRIPTION:Join families from Texas for a CdLS Foundation-sponsored Family Gathering. \nGraciously hosted by the Hendricks and Woods/Jacob families. \nSaturday\, May 30\, 2026\n10:30 a.m. – 1:30 p.m. C.T. \nVictory Forest Community Center\n3427 Hemphill Street\nFort Worth\, TX 76110 \nFamily Gatherings are planned with your whole family in mind. \nCdLS Foundation staff and Clinical Advisory Board members will be in attendance. \nLUNCH WILL BE PROVIDED. Families are asked to bring a side dish\, snack\, dessert\, or beverage to share. \nRoom Block Information:\nThe Omni Fort Worth\n1300 Houston Street\nFort Worth\, TX 76102 \nBook Your Hotel Room Here.\nRoom Block Closes: Friday\, May 8\, 2026. \nRegister Here.
URL:https://www.cdlsusa.org/event/southwest-family-gathering-texas/
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