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We are very grateful to every one of you, our sponsors, golfers, and donors, whose participation and generosity made our recent golf tournament a heartfelt success. Thanks to your support, we raised an incredible $6,200 for the CdLS Foundation. Your generosity empowers us to continue serving nearly 4,000 families across the United States and around […] 
Meet Zuri, Our Joyful Bloom! Zuri is a bright light in our lives, full of strength, love, and a spirit that keeps blooming no matter the season. She lives with Cornelia de Lange Syndrome (CdLS), a rare genetic condition that affects her daily life in many ways. But despite the challenges, Zuri continues to […] 
International CdLS Awareness Day is observed each year to increase understanding and bring attention to Cornelia de Lange Syndrome (CdLS), an often misdiagnosed and little-known genetic condition. This special day serves as an opportunity for families, advocates, and healthcare professionals to unite in raising awareness and promoting early diagnosis, research, and support for individuals affected […] 
Join Us for the 6th Annual CdLS Awareness Parade & Celebration! 📍 Central Falls📅 May 10, 2025🕘 11:00 a.m. We’re proud to host our 6th annual event in honor of Samira, our beautiful sister who was born with Cornelia de Lange Syndrome (CdLS). This day is all about raising awareness for CdLS and celebrating children with […] |
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This event will help families understand the numerous stages to be considered while developing a special needs master plan for their loved one experiencing a disability. Presented by Mary McDirmid with All Needs Planning; top considerations they hear and help their clients with include: government benefits funding their lifetime tax efficiency insurance housing employment trusts […] |
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Join the Arc of Illinois for an important webinar on Medicaid and its vital services. The webinar will be held on Friday, May 23, from 12 - 1 p.m. ET. They will discuss the proposed federal funding cuts and how families and individuals with disabilities can advocate against these changes. Your voice matters—let’s make a […] |
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