All Day

Champions for CdLS Golf Tournament

We are very grateful to every one of you, our sponsors, golfers, and donors, whose participation and generosity made our recent golf tournament a heartfelt success. Thanks to your support, […]

In Full Bloom for Zuri

Chicago, IL

  Meet Zuri, Our Joyful Bloom! Zuri is a bright light in our lives, full of strength, love, and a spirit that keeps blooming no matter the season. She lives […]

International CdLS Awareness Day

International CdLS Awareness Day is observed each year to increase understanding and bring attention to Cornelia de Lange Syndrome (CdLS), an often misdiagnosed and little-known genetic condition. This special day […]

CdLS Awareness Day 6th Annual Parade

Macomber Stadium 964 High Street, RI

Join Us for the 6th Annual CdLS Awareness Parade & Celebration! 📍 Central Falls📅 May 10, 2025🕘 11:00 a.m. We’re proud to host our 6th annual event in honor of Samira, […]