Protected Tomorrows, Parent University: 2021 Parent University™ – A Year in Review
We have worked all year to take next steps. But it is easy to get caught in THE GAP. Sometimes, when we are working toward a big goal, we only […]
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CdLS Remembrance Day
Losing a loved one with CdLS at any age can be life-altering. Parents, siblings, relatives and friends feel tremendous loss and many times have a difficult time understanding why. It […]
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Lights of Love for our CdLS Angels
February 12th is CdLS Remembrance Day, we ask everyone, everywhere, to light a candle in remembrance of each and every one of our loved ones who are no longer with […]
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Rare Disease Day
Rare Disease Day® takes place on the last day of February each year. The main objective of Rare Disease Day is to raise awareness amongst the general public and decision-makers […]
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Protected Tomorrows, Parent University: Siblings & Caregivers: What They Might Want to Ask & What We Need to Tell Them
In this class, we will discuss how to prepare siblings and future caregivers so that they feel comfortable taking over the role. Let’s bring up the tough topics. We as […]
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Protected Tomorrows, Parent University: – Finance, Taxes, & Special Needs – Making It All Work in The End
We understand that often we as parents put our children first. It’s natural. But we need to make sure we are financially secure as well, because without us, our children […]
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Multidisciplinary Clinic for Adolescents and Adults
This Foundation-managed, free clinic occurs twice yearly at Greater Baltimore Medical Center (GBMC) in Baltimore, MD. Foundation Medical Director Antonie Kline, M.D., Director of Clinical Genetics at the Harvey Institute […]
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Protected Tomorrows, Parent University: – Benefits: What You Need to Know & Get Clarity about the Often-Asked Questions
We will discuss SSI, SSDI, DAC, Medicare, and Medicaid. We will talk about confusing topics like A.) Charging your child rent versus using the fair share formula. B.) Why do […]
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National CdLS Awareness Day
CdLS Awareness Day is observed each year in order to shed light on this often misdiagnosed, little-known genetic syndrome. Parents, volunteers and others request official Awareness Day proclamations from governors […]
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Protected Tomorrows, Parent University – Siblings & Caregivers: What They Might Want to Ask & What We Need to Tell Them
In this class, we will discuss how to prepare siblings and future caregivers so that they feel comfortable taking over the role. Let’s bring up the tough topics. We as […]