CdLS Foundation January Virtual Support Group for Parents
We know how much you carry every day — appointments, school meetings, medications, behaviors, and the emotional weight of loving someone with CdLS. It’s a lot, and you don’t have […]
10 events found.
Events
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In the Room: Navigating the Space Between Adjustment and Acceptance in the Context of a Genetic Diagnosis
Hosted by Courageous Parent Network (CPN) Receiving a genetic diagnosis (or lacking a diagnosis) for a child can be a profoundly life-altering experience for families. In this session, Mary-Frances will […]
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CdLS Foundation February Virtual Support Group for Parents
The next CdLS Foundation Parent Support Group is scheduled for February 5, and we’d love to welcome you. 📅 February 5, 2026 🕖 7:00–8:15 p.m. ET 📍 Zoom (link provided […]
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In the Room: Unlocking Answers: What Every Parent Should Know About Genetic Testing
Hosted by Courageous Parent Network (CPN) Genetic testing can play a powerful role in helping families find answers about their child’s health. In this session, we’ll walk you through the […]
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International CdLS Remembrance Day
Losing a loved one with CdLS at any age is life-altering. Parents, siblings, grandparents, relatives, and friends experience profound grief, often accompanied by questions that have no easy answers. During […]
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2026 International CdLS Remembrance Day: Continuing Your Child’s Legacy
International and United States Gathering (English Speaking) – Continuing Your Child’s Legacy After the main Remembrance Day event, international and United States families are warmly invited to stay with us […]
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Día Internacional de Conmemoración del Síndrome de Cornelia de Lange
El 12 de febrero de 2026, nuestra comunidad CdLS de todo el mundo se reunirá para un encuentro muy especial: el Día Internacional de Recuerdo CdLS. Este será un espacio […]
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Continuing the Legacy of Your Loved One
United States families are warmly invited to join us for an English-language gathering focused on connection, reflection, and emotional support at 6:00 p.m. (Eastern Time, U.S.). Register here for the […]
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Ask the Special Education Boss®: Live IEP Q&A with Karen Mayer Cunningham Webinar
Hosted by Parenting Special Needs Magazine Ask the Special Education Boss®: Live IEP Q&A with Karen Mayer Cunningham LIVE ONLINE EVENT Join Parenting Special Needs Magazine for a free live […]
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Rare Disease Day
RARE Is Not Rare One out of every 10 Americans is living with a rare disease. Worldwide, there are more than 300 million people with rare diseases. Too often, these […]