Hosted by Courageous Parent Network (CPN)

Receiving a genetic diagnosis (or lacking a diagnosis) for a child can be a profoundly life-altering experience for families. In this session, Mary-Frances will draw on her extensive experience working with parents and caregivers to explore the complex emotional responses that emerge as families learn to live with a diagnosis or uncertainty and build their “new normal.” Do families truly accept the diagnosis, or do they adjust without full acceptance? Can both coexist? Join Mary-Frances and a panel of parents as they delve into the realities of accepting versus adjusting while navigating the challenges of their child’s medical complexity.

This event will take place on Wednesday, January 21st at 8:00 pm ET (7:00 pm CT, 6:00 pm MT, 5:00 pm PT).

Learning objectives are:

Differentiate between emotional adjustment and acceptance in the context of a child’s genetic diagnosis.
Discuss the varied emotional responses and coping strategies parents may experience over time.
Describe how a genetic diagnosis can be understood as one aspect of a child’s identity, rather than a defining characteristic.
Identify at least two ways that clinicians can support families in light of a genetic diagnosis.

Register here