Finding resources and organizing information are two common struggles for many parents in our Network. But great news – CPN recently discovered two amazing tools that promise to make these […]
Please join us! CdLS Awareness Dinner & Fundraiser Event Honoring Kavin Mistry Meet Kavin, my remarkable cousin whose journey with Cornelia de Lange Syndrome has been one of resilience and […]
How much is enough for you, as the caregivers? How much is enough for your child? How to incorporate your child’s plan into your own. What is the most effective […]
We're excited to announce the 2024 East Coast Regional Retreat. Mark your calendars! Guided by your input, the CdLS Foundation has reimaged what was the National conference into regional retreats. […]
Come meet the faces BEHIND Courageous Parents Network, as well as some of the parents and providers IN the Network. (That includes you, btw.) Spend an hour with us talking […]
Saddle up and join us …… At Carters Arena in Chiefland, FL we have some rodeo fun while raising awareness and funds for the CdLS Foundation. The Carter family has […]
Our daughter Aubrie Schilling was diagnosed with Cornelia de Lange Syndrome last year at 15 months old through genetic testing at Nationwide Children's Hospital in Columbus, Ohio. CdLS is a […]
Lace up your …. And get ready to walk, run and have fun while supporting the CdLS Foundation. Meet Zachary Isaiah Guran! He is 3 years old and was born […]
Let’s hear more from people who have creative scenarios – DIY, Campus, Group Homes, Independent Living. Come to this class prepared for the homework you need to do. How do […]
The Walk for Will & Hope is returning to Stony Creek Metropark, 4300 Main Park Drive, Shelby Township, on Sunday, October 13. This event is a wonderful opportunity for community members to […]
